QUICK JUMP:

Webmaster's note: If you find a bad link, or a new link that you think should be considered, please e-mail me with the pertinent information. That way you will help us to keep other visitors to this page with the most up to date information.

PREEMIE SITES

  • American Assocaition for Premature Infants. Learn about their mission, and then click on the "Learning Center" to be connected to their resources including: bookstore, links page, NICU Glossary, page on Apgar Scoring , weight conversion chart and a 2002 Immunization Chart.
  • Austprem Inc. Through Austprem, families who have experienced the complex challenges of parenting a premature infant reach out to other families facing this journey, and offer friendship, information and support. Regular online chat schedule (note that these times are Autralian times so make sure to convert if you are not Australia!), lots of information and resources.
  • Babylinq is your "linq" to great preemie clothes, baby products, maternity underwear, tips, and websites.
  • Breastfeeding Premature Infants. This page lists several wonderful articles that are reprints from "Beginnings" magazine, and sponsored by the LaLache League.
  • Carrying To Term Pages is an online how-to guide for carrying a pregnancy to term after diagnosis of a condition fatal to the baby. The site includes birth plans for terminally ill babies, memorial ideas, funeral planning, and emotional support.
  • Closer Look at Preemies. Wow, check it out... Learning about preemies | Preemies in the News | Links | Books | After the NICU | Foundations for Preemies | Newborn and Preemie Patterns | Clothing for preemies | Tips on feeding and caring for preemie | Outcome for preemies | Statistics for preemies | Documentary on Preemies
  • Connection Between Gum Disease and Pregnancy Problems. Very short article noting the statistical connection between gum disease and increased risk of premature birth.
  • Developmental Difficulties--When Premature Infants Fall Behind. An article by By Gwen Morrison on the TwinsToday.com website.
  • Empowering Parents of Premature Babies page allows you to view all of the conference papers from the first Alexis Foundation/Premie-L conference in 1998.
  • Fetal Monitoring. There are many different opinions about Fetal Monitoring. This page will attempt to put some of these thoughts on line for people to be able to make informed decisions about their care, including their choice of monitoring during labor and birth.
  • For a Special Baby Preemie Clothes. A Yahoo store site with lots of wonderful preemie products and clothes. (Heads up: I couldn't make the site work in Netscape, so you might want to make sure you try opening it in Explorer first...)
  • For Parents of Preemies: Answers to commonly asked questions, is an excellent site with over 60 categories put together by eight medical professionals.
  • Growing Strong tells the story of how the impact of premature birth and disability shaped the author's faith and life. The full book is also available in e-book form (details on the webpage).
  • Itty Bitty Bundles. Itty Bitty Bundles provides a selection of baby clothing for preemie babies 4-7 lbs. and extra tiny NICU micro preemies 1-3 lbs. Premature baby clothes at affordable prices.
  • Jeff's Life is put together by the father of a one-year-old former preemie. The site includes many essays about his son, Alex, and what experiences they have gone through. Wonderful resource.
  • Learning Problems and Developmental Disorders of Former Preemies. Includes Developmental Delays and Disorders; Early Intervention for Children Ages 0 through 5; Retinopathy of Prematurity; and Support for Parents.
  • Marianne's page on NEC provides information for parents of premature babies who have encountered NEC (necrotizing enterocolitis)
  • Mary Searcy's Preemie Resources, a wide range of resources, books, and internet sites specifically geared to the issue of preemies.
  • MedlinePlus: Premature Babies. A list of articles, online news articles and websites related to Premature Babies.
  • Meriter Hospital Perinatal Program - Primarily for parents of Preemies, including answers to commonly asked questions.
  • NiCu Network™ was created by parents to support parents of premature babies. Here you can connect with other preemie parents, share your experiences, and utilize the resources provided. This website helps you to remember that while you may not know many people who have been in your shoes, you are certainly not alone.
  • NICU-Web offers information on common Diagnoses, procedures and interventions, neonatal resources, medical resources, and reference materials.
  • Nurture Place. Preemie clothes and newborn baby clothes at outlet prices. Specializing in preemie baby clothing and for the 1-3lb. micro-preemie, 3-7 lb. preemie, and newborn babies up to 9 months.
  • Nurturing Your Premature Baby is the site for information on a "Suite University 101" course in 8 lessons.
  • Parent's Place Discussion Forum is an open forum for parents of babies born prematurely.
  • Parent Soup offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine. A subsite of iVillage.
  • Peeny Weeny Baby. Premature baby clothing and accessories. This company is located in the United Kingdom, so I assume shipping to the US and other than EU countries would be kind of expensive... but it is a good stop for our EU preemie parents.
  • Preemie-L Discussion Forum, is a very active site where you can communicate about all topics related to preemies. In a recent 4-day period, we noted almost 200 entries! Also check out the Preemie-L Homepage.
  • Preemie Magainzine. Although it is the site to plug Preemie Magazine, the info you can get their is wonderful! Site includes info on finding a support group, listing of resources, online forums and online live chat. Also includes a Birthday Club, a Prayer Page, and an Angel Page, as well as archive of the magazine articles.
  • Preemie Clothes & Accessories from Zach's 5th Avenue, featuring affordable quality clothing and accessories for the premature and low birth weight baby
  • Preemie Group. A support group for parents of preemies. We offer many resources from the NICU through school age. The members are supportive,warm and friendly who have a wealth of knowledge when it comes to preemie related issues.
  • Preemie Miracles. A Yahoo list group for parents of premature babies and also moms-to-be who may be at risk for delivering early and may have questions for mother's of premature infants and children. This list offers support to parents of children born prematurely and the friendship of people with things in common
  • Preemie Moms. A Yahoo support group promoting support and encouragement for mothers (bio and adopted) of premature children. The preemies can be of any age, from 0 to adult.
  • Preemie News. An online magazine for parents of preterm babies.
  • Preemie Patterns. What a great site to link up with crocheted, knit and sewing patterns for preemie hats, booties and mitts and preemie sweaters.
  • Preemies R Us. Clothing site.
  • PrematureBaby.org This is a site designed around a group of moms, dads, grandparents of premature babies/children.
    They gather together and offer support, friendship and a postive outlook on parenting preemies young and old. They are proud of their children and the obstacles and milestones they overcome. They also have a forum for interested members.
  • Premature Babies Guide at Keep Kids Healthy. This page took a long time to download so if you are interested be patient. Article talks about risk factors, general info and some additional links. Good info.
  • Premature Baby - Premature Child is a site of support for parents of children born prematurely. Includes mailing lists, resources, etc.
  • Premature-Infant.com Articles about preemie issues, NICU do's and don'ts, resources for preemie parents and dozens of wonderful "imagines" from both parents and nurses.
  • Premature Infants: A Later Look. A series of several articles on premature birth on the AboutOurKids.org website can be accessed through this page.
  • Prematurity. A great overview article from the "Disney Encyclopedia of Chidlren's Health."
  • Spenser's Hope was formed to help families who are experiencing preterm labor and premature birth. Aim is to provide education and support to families today and to fund research to help determine the cause of preterm labor tomorrow. Includes personal story, preterm birth resources, preterm labor resources.
  • Sweet Child of Mine. Click on "preemie baby clothing" for a great selection.
  • T-Bone's Survival Tips for New Preemie Parents includes suggestions to help parents, family and friends cope with the birth of a premature baby.
  • The Babies Planet Preemie site.
  • The Early Edition: An online newsletter for parents of preemie, including "a collection of wisdom and discussions from the on-line support group 'Preemie-L'.
  • The Premature Infant. A online article, short but interesting. Page also includes links.
  • The Preemie Page. A list of information of interest to those who have had preemies from the website "Motherstuff."
  • The Preemie Place. Great site with articles of interest to preemie parents, lots of resources, and a forum to participate in.
  • The Preemie Ring Homepage, a group of hundreds of preemie sites that are all linked via a "ring." No commercial sites here, and are usually individuals who have put their story on the web. You can start the ring here or enter your own site for consideration.
  • The Preemie Store Another company that specializes in clothing for premature infants. Many of their products are specifically designed for use in the Neonatal Intensive Care Unit.
  • Tommy's CyberNursery-A Preemie Web Site! A great site of interest to parents of premature infants. Includes an extensive link system that will surely have many things of interest, and may very well be the best site on preemies for you to have as a permanent bookmark!
  • Your Preemie. Website for the new magazine "Your Preemie".
  • Your Special Newborn: A Guide for Parents of Preemies, includes a wealth of information on getting to know your preemie and the NICU, and on growth and development. Includes extensive preemie links.

If you find a bad link, or one that you think I should consider to be added, please don't hesitate to e-mail me with the pertinent information.

PERSONAL PREEMIE SITES

  • Imagine--Stories of Preemies, a collection of personal stories that have been posted from the Preemie-L listserve. Heart wrenching, but validating for other parents of preemies.
BEDREST SITES
(almost all of the following sites of interest for bedresting moms are part the resources from Mary Ann McCann's new book Days in Waiting: A Guide To Surviving Pregnancy Bedrest.)
  • Abracadabra Maternity offers a full selection of maternity clothes that are available for on-line purchase.
  • Baby Catalog is a web site devoted to the on-line purchase of furniture, bedding, books, toys, and nursery supplies.
  • Babycenter.com
  • The Baby Depot Also known as Burlington Coat Factory, The Baby Depot is an on-line shopping service.
  • Baby & You (JCPenney) offers maternity clothes, layette and baby clothing, furniture, and some nursery accessories. All available for on-line purchase.
  • BringingUpBaby.com has a mission to "Provide Quick and Easy Access to Preventive Healthcare Information on the Internet for New and Expecting Parents". Includes safety information, class info, prenatal and newborn sections, as well as many other options.
  • The Company Store Clothing and linens.
  • Cosco Consumer Relations Catalog available for purchasing car seats, strollers, cribs, high chairs, etc. Web page includes detailed information and photos of the many products offered, as well as a "Where To Shop" guide.
  • Evenflo Consumer Affairs Feeding products and baby accessories. While there is not a catalog available, there are brochures available that describe their products. The web page offers full product information and photos.
  • Fisher Price "Toy Fare" catalog available for $5. Catalog includes all Fisher Price toys, clothing, baby monitors, and other products.
  • Gerber Baby Products There is not a catalog available, but there are brochures and informational packets which are available. This phone number is staffed 24 hours/day. There is also a mailing list to receive coupon packets and information about their baby foods, infant formula, and feeding products. The web page is comprehensive and allows consumers an opportunity to ask questions of the Gerber Product Specialists.
  • The Gymboree Corporation On-line store for purchasing baby clothes. Also, information about the Gymboree infant classes.
  • High Risk Pregnancy. What exactly does it mean when you are told you have a "high risk" pregnancy. Understandable article written by an MD.
  • Iowa Women's Health Center has a wonderfully extensive site that includes information on bedrest, emotions during pregnancy, pregnancy problems and risks, and many other important information pages.
  • Johnson & Johnson Johnson & Johnson does not have a catalog, nor do they accept direct customer orders. However, they have product information packets and a mailing list.
  • La Leche League International is an organization providing women with breastfeeding information and support. Call to find out where your local chapter is located. LaLeche League also offers support groups in major cities throughout the country. Offers a helpful web page. Women can submit questions via e-mail for answer by a qualified lactation consultant. Information is also available for women breastfeeding premature infants or multiples.
  • Le Petite Baby This company is the world's largest supplier of clothing for premature (weighing less than seven pounds) infants. Their on-line store allows for purchase of clothing.
  • Mary Searcy's Pre-term Labor Resources, offers reviews of materials on bedrest and on problem pregnancies.
  • Medela Rental Services Breast-pump rentals. Web-page offers information and on-line lactation consultants to answer questions.
  • Mothers of Supertwins (MOST) is an international non-profit support network of families with triplets and more. MOST provides information, resources, empathy and good humor during pregnancy, infancy, toddlerhood and school age. Use our online form to join MOST and receive their Quarterly Magazine.
  • Mother's Nature On-line shopping available. This company offers cloth diapers, nursing clothes, baby slings and carriers, and more.
  • National Organization of Mothers of Twins Clubs, Inc. is a great web site offering a wealth of information about parenting twins. They oversee Twins Clubs all over the country, and the web-site will help you locate a club near you.
  • The Online Preemie Store Preemie products, resources, and a discussion forum.
  • Parent Soup offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine.
  • The Preemie Store Another company that specializes in clothing for premature infants. Many of their products are specifically designed for use in the Neonatal Intensive Care Unit.
  • Pregnancy Today is a new, extensive online magazine devoted to pregnancy and resources. A great place to browse as you are on bedrest!
  • Pregnancy Bed Rest: Information and Support for Parents and Caregivers has stories and information for both families and caregivers. Click on "families" or "caregivers" for extensive resources applicable to each group.
  • Sidelines Canada. Canada's national non-profit network supporting families experiencing complicated pregnancies. Includes information, articles, links and feedback. Currently a French Canadian version under construction.
  • Sidelines National Support Network has many local chapters throughout the United States. The staff of Sidelines match women on bedrest with a woman who has experienced a similar bedrest. Also available is a magazine by and for women with high-risk pregnancies.
  • Spencer's Spencer's is a company well-known for layette and infant clothing. They have a well-organized web page, complete with on-line shopping services. They also have a catalog you can request.
  • Triplet Connection is a nonprofit network of caring and sharing for multiple-birth families. They provide information to families expecting triplets, quadruplets or more as well as encouragement, resources and networking opportunities for families who are parents of larger multiples. Includes a chat room, topics of interest, links, products, and information on their convention, among other things.
  • United Way of America offers helpful programs for low income families or single parents who need assistance while on bedrest. Consult your local telephone directory for a local listing, or call their number and inquire about services and funded agencies that are available.
  • Wal-Mart Wal-Mart offers a complete on-line store. Their entire store is available, just click on the "Infant and Baby" icon to move to that section.

If you find a bad link, or one that you think I should consider to be added, please don't hesitate to e-mail me with the pertinent information.

INFANT LOSS/MISCARRIAGE SITES

  • A Mother's Grief. A place for grieving mothers to come together and talk about the loss of their baby. This site offers various means of support. We have a Chat Room, Message Board, Memorial Wall, Poems & Quotes, Keepsake Store, Our Story page and much more. This is a huge website with great resources!
  • A Trisomy 18 Journey, Abigail Grace Wilsford. Story of a baby diagnosed with Trisomy 18 before birth who was carried to term and lived 5 days. Includes grief resources and memorial ideas.
  • Across the Miles: Women's Journeys through miscarriage, stillbirth, and infant loss. This is a developing site dedicated to the stories of women who have suffered miscarriage, stillbirth and infant loss. Add your own story!
  • Always Loved ~ Never Forgotten ~ Forever Missed~. Is actually a "Yahoo Group" that has recently added a newsletter For Grieving Parents.The Newsletters come out every Sunday Evening with Greiving or Memorial sites/links, Poems, and anything else that the members and visitors send in. The home website for the group is http://home.comcast.net/~alnf1 .
  • American SIDS Institute includes information on research, a memory page, links to other SIDS sites and bereavement services.
  • Angel Babies - Forever Loved is a site that includes several items of interest including several articles of interest to parents who are grieving. Includes a memorial page.
  • Angel Babies in Heaven, Pregnancy Loss Memorials Offers hand painted stepping stone baby loss memorials as special
    keepsakes for bereaving parents. Site also offers parental support and their own personal story of their stillborn daughter.
  • Angel Teddy Bears Foundation. the Foundation's purpose is to deliver teddy bears to hospitals which are in turn given to parents of stillborn children, miscarriages and neonatal loss. Along with these teddy bears is is a card containing a sympathy
    message and the website address.
  • Angel Whispers. Angel Whispers offers a variety of services for coping with baby loss such as E-mail Support, Monthly Support Group Meeting, Subsequent Pregnancy Support Group Meeting, a Quarterly Newsletter and a Resource Library among other things.
  • A Heartbreaking Choice. For parents who have interrupted a wanted pregnancy following poor prenatal diagnosis. Includes resource list, remembrance garden, poetry, other educational information. You can also register to be included in their chatroom. Also includes over 40 local support groups for parents who have interrupted a pregnancy.
  • Angel Whispers. A non-profit group for families who have lost a baby during pregnancy or shortly after birth, as well as those who are expecting again.  We provide email support, a quarterly e-newsletter, care packages, birth certificates and support groups.
  • Arizona Sudden Infant Death Foundation has lots of information for anyone seeking more information on SIDS. Includes resources for both families and professionals, an on-line version of their newsletter, a Memorial Page, and merchandise. A Spanish version of the site is also available under "additional information."
  • Baby Angel Pics. The BabyAngelPics Project has been created to donate photo retouching resources to the parents and families of a stillborn baby. Through this free service, our skilled digital artists work with a digital copy of your original, eliminating medical equipment, removing unsightly marks and even replacing the background if desired. Mothers can scan their photos and upload them to us or have a participating retail partner scan them and upload them to us.
  • Babyloss Information, support, forums, stories and dedications for women and their partners who have experienced the devastating loss of a baby.
  • Bears for Bereaved Mommies. In addition to the valuable information and resources, find out about how you can participate in the bears for mommies program in your area as well as the "ribbon campaign".
  • Bereaved Families of Ontario updated regularly, and includes over 300 links to other web sites on the topic of dealing with all types of grief. And, it's frequently updated!
  • Bereaved Parents of the USA lists chapter locations and info, information for the newly bereaved, and now has all of their newsletters online back to the fall of 1999.
  • Bonnie Babes Foundation: A nonprofit organization in Australia providing counseling services and training.
  • Born Angels is a site for grieving parents who have lost a baby at any stage of their pregnancy; ectopic pregnancy, miscarriage, or stillbirth...and for their family and friends.
  • Born Still offers email support, poetry , links, and free greeting cards.
  • Born Too Soon is a marvelous site especially for women who have lost a baby during pregnancy or birth at any time of their pregnancy. The site discusses in depth the emotional side of pregnancy loss and there are special pages for still birth, ending a pregnancy due to abnormalities, children and giref and a page for relatives/friends on helping someone with pregnancy loss. Also offers free remembrance certificates for anyone who contacts my site and pages for dedications.
  • Branden's Page. A lovely memorial site by the parents of Branden Lee who was stillborn on July 9, 1996 at 33 weeks gestation.
  • Carrying To Term Pages is an online how-to guide for carrying a pregnancy to term after diagnosis of a condition fatal to the baby. The site includes birth plans for terminally ill babies, memorial ideas, funeral planning, and emotional support.
  • The Center for Infant & Child Loss works with Maryland families and communities facing the sudden unexpected death of their infant or child as they learn to live with their loss. The Center is committed to increasing the understanding of Sudden Infant Death Syndrome (SIDS) and other child deaths, risk reduction practices, grief, and compassionate intervention.
  • Center for Loss in Multiple Births (CLIMB) now has a web page introducing their services. You can e-mail them to receive a free copy of their newsletter.
  • Centering Corporation is one of the largest distributors of all grief materials, including infant loss. They now offer their catalog of materials online.
  • Children Are A Gift Foundation. This wonderful website tells you about the work of this foundation in Texas USA. If nothing else, take a virtual photo tour of the fantastic and impressive Children's Park that they developed to remember infants. We are most impressed!
  • Compassion Books, 7036 State Hwy. 80 South, Burnsville, NC 28714; 828-675-5909; toll free 1-800-970-4220. Over 400 resources to help children and adults through serious illness, death, loss, grief and bereavement. Print catalog available by request.
  • Compassionate Friends provides locations of all of their 575 chapters in the U.S. and links to at least 29 different chapter homepages.
  • Coping with the Emotional Aspects of Pregnancy Loss An excellent primary guide for parents who have recently experienced the death of a child through miscarriage, stillbirth or other perinatal loss.
  • Ectopic Pregnancy A compassionate information resource compiling facts, stories, poetry and other items of interest to those who have experienced an ectopic pregnancy.
  • Elizabeth A. Pector, M.D. has set up a page of poetry and prose focusing on multiple birth loss. From here you can also connect to her multiple birth loss resources page.
  • Empty-Cradles.com is dedicated to honor all the babies that have left this world before we were ready for them to. Whether you are the mom, dad, grand-parent, aunt, uncle, sibling or friend, you are welcome to put up your FREE memorial for your little angel. Share your story, pictures, poems, or anything else you want to share about your baby. Just abide by the Terms of Service.
  • Glory Babies... of the Children are a Gift Foundation offers personal stories, articles, a newletter, prayers, poems, memorials, resources & links.
  • HAND (Helping After Neontal Death) Founded in 1981 to help parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth. It is aa resource network of parents, professionals, and supportive volunteers that offers a variety of services throughout Northern California and the Central Valley.
  • H.A.N.D. (Houston's Aid in Neonatal Death). A parent run support group in the greater Houston area serving the needs of parents experiencing infant or pregnancy loss through miscarriage, stillbirth, or neonatal death anytime through early infancy. Writings, resources, links and information on support meetings in the Houstan area.
  • HAND of the Peninsula. This web site by a local chapter of HAND (Helping After Neonatal Death) offers information on their resources, their programs, their support groups. Includes "telephone crisis" support.
  • Hannah's Prayer, Christian emphasis, including infertility or the loss of a child at any time from conception through early infancy. Info on their network of local care/support chapters through the US, "live chat" room, and a penpal connection area. They also have a newsletter, Hannah To Hannah.
  • Haven of Hope and Healing, Inc. is a nonprofit, organization committed to providing mental, emotional, spiritual, and educational support to those who have experienced the loss of a baby through miscarriage, stillbirth or infant death. We are a nondenominational organization that helps parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth.
  • H.E.A.R.T.S. (Helping Empty Arms Recover Through Sharing) is a Baby Loss Support Program for anyone who has been touched by the loss of a baby during Pregnancy or shortly after Birth. One-to-One Support, Group Meetings, Resource Library, Monthly Newsletter, Website and a Pregnancy After Loss Group. Created in 1996 by two mothers who discovered a lack of support in their own community after the losses of their precious babies. Located in Sherwood Park, Alberta, Canada but open to all.
  • Heavenly Angels helps bereaved parents all over the world by offering a safe Haven to share the loss of their angels. They believe in programs suitable for each different bereaved parent, activities that continue a healthy grieving process, and Memorials like online Memorials along with actual Memorial Quilts.
  • Heavenly Angels In Need. A woman's personal ministry as led to a help site with all kinds of way for you to help. Of special note are her free patterns for knitting, crochet, sewing to make things like burial gowns, blankets, etc.
  • Heaven's Lullaby. At Heaven's Lullaby you can find information about different types of pregnancy and infant loss, and free memorial pages for your little one. Includes info on Ectopic Pregnancy, Miscarriage, Stillbirth, Abortion, Prematurity , SIDS and Anencephaly.
  • Honored Babies for those who have experienced miscarriage, stillbirth, neonatal death, and/or pregnancy termination. You'll find an online Memorial, Support Email Lists (separate lists for Mothers and Grandmothers), a comprehensive Resource Center, and Keepsakes.
  • Infants Rememberd In Silence, Inc. is dedicated to offering support, education and resources to parents, families, friends and professionals on the death of a child in early pregnancy (miscarriage, ectopic pregnancy, molar pregnancy, etc) or from stillbirth, premature birth, neo-natal death, birth defects, sudden infant death syndrome (SIDS), illness, accidents, and all other types of infant & early childhood death.
  • LaBelle Dame. After experiencing the loss of her second child. this jeweler designed pendants and a bracelent for mothers to remember their angel babies.
  • Lilly's Rose Garden is a memorial book to remember little angels.
  • Little Ones Lost includes information on miscarriage, stillbirth, ectopic pregnancy and infertility. Includes chat and guestbook as well as links section.
  • Loss in a Multiple Pregnancy: Information and Support is the homepage of Lynne Schulz, Co-ordinator of the Murraylands Lutheran Stillborn Infant Support Service in Murray Bridge, South Australia. You will find a dedication page for multiples, sharing pages, poetry, research papers, and links.
  • M.E.N.D., support with a Christian emphasis for those families whose baby has died, or a subsequent pregnancy after a loss. Links to Bereaved Family Web Pages, other resources, and info about their newsletter and program.
  • M.I.S.S. (Mothers In Support and Sympathy) is a grass roots organization dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations offered. List of Do's and Don'ts to help bereaved parents, and a listing of groups and resources in Arizona.
  • Maitland Support Group Miscarriage-Stillbirth & Neo-Natal Deaths in NSW - Australia presents this website Personal Story with resources, Candle of Light Room, Listen to Me, Recommended Reading, Coping with Holidays & Anniversaries
    Organization& Internet Support, Wall Of Hope, Understanding Grief, and Resolutions for Bereaved Parents.
  • Maternal Grief page of obgyn.net is devoted to comfort the sorrow of hearts grieving the loss of babies through infertility, miscarriage, stillbirth, neonatal death, and sudden infant death, and to offer ongoing support.
  • Mending Broken Hearts is an easy to navigate site for bereaved families and caregivers.Includes a guest journal, poetry, articles to help you understand grief, and an angel baby photo album.
  • Miscarriage & Infant Loss Memorial Book. An online version of St Pauls Tintagel Miscarriage Support Group's Memorial Book, which is kept at the Catholic Church Tintagel Cornwall. Anyone of any religion can put names of babies and families in the book.They hold an annual mass for all babies who die during pregnancy and up to 1 year old and their families. Any name put in the online book will also be registered in the printed book.
  • Miscarriage Association of the United Kingdom offers information (including several leaflets for sale), support services, information on upcoming events and links
  • Miscarriage Help. A site, hosted by author Ellen DuBois, for those who have suffered a miscarriage.
  • Miscarriage Information Page gives basic information for anyone who has suffered a miscarriage.
  • Miscarriage Support and Information Resources. An attractive and rich source of information for those looking for assistance after a miscarriage.
  • Miscarriage Support Groups in NZ Tips for coping with miscarriage, contact information for Miscarriage Support Groups in New Zealand, links to other Internet resources and access to our online support forum soc.support.pregnancy.loss.
  • Missing Grace, a personal web page, but so much more, with information on medical issues, proactive prenatal care, how to cope, etc.
  • Missing Grace Organization (Grieve Restore Arise Commemorate Educate) The Missing GRACE Organization serves to help families on their journey through pregnancy and infant loss, infertility and adoption. We provide support and resources to aid individuals as they Grieve, Restore, Arise, Commemorate and Educate. Further, we commit to make available educational opportunities that will help bring about awareness and prevention of stillbirth. Missing GRACE support resources include: Membership with quarterly newsletter and monthly conference calls, active support group meetings, online support, annual conferences, information about stillbirth prevention and awareness, education courses for medical professionals and prenatal care classes for moms during a subsequent pregnancy after loss, Crisis Care for Couples in the hours and days after a baby has died, photo retouching, GRACE Memory Albums and up-to-date listings of national and international resources.  We also offer a keynote speaker, drama team and dance group that can be commissioned for events such as conferences and seminars with a focus on pregnancy/infant loss and infertility.
  • Multiple Birth Prenatal Education & Bereavement Support. This Web Site offers information regarding multiple births. It includes pregnancy and post-natal information and, from the point of view of new parents, it attempts to address some of your questions and concerns. Although a joyous time, there are sometimes risks in multiple births. Hence this Web Site also offers bereavement support for parents who have lost one, more or all of their multiple birth children during pregnancy or in infancy.
  • My Forever Child. Artisan handcrafted and personalized jewelry and keepsakes to comfort those touched by the loss of a Child
  • My Parents Are Survivors an online support group with total support from all over the world. This is in honor of
    the Parents who have lost a child. Includes great information for all members of the family, as well as a very large Remembrance Section.
  • National SIDS and Infant Death Program Support Center is creating a nationwide network for private and public organizations, committed to ameliorating SIDS and reducing infant mortality.
  • National SIDS/Infant Death Resource Center (NSRC) provides information services and technical assistance on SIDS. If you have Acrobat Reader you can also download The Death of a Child, The Grief of the Parents: A Lifetime Journey.
  • National Stillbirth Society. Includes membership information, volunteer opportunities, legislative initiatives, state director info, and more.
  • Now I Lay Me Down To Sleep. A hugely important resource of dozens photographers around the United States who provide photographic services for parents experiencing an infant loss, (as early as 20 weeks gestation). At your request, they will have a professional photographer come to your hospital location for a private and sensitive photography session. You will be provided with a DVD of your baby set to a meaningful melody and the CD file of all photographs taken that you can personally reproduce up to a 5X7 size. (Please note: Each photographers offer varies location to location. Check listing photographer for what he/she can provide.)
  • Operation Angel: A Miscarriage and Child Loss Ministry includes ideas on how you can memorialize your baby, poetry, links, and info on how you can participate in their Memorial projects.
  • Our Hearts Will Go On is a web site established by a group of parents who have experienced miscarriage and stillbirth. Site includes stories and pictures of their babies, poetry, list of suggested reading materials, and links.
  • Over the Rainbow Online, Pregnancy and Infant Loss Support Articles and information, interactive support groups, virtual memorial quilt, poetry and ideas for memorialization.
  • Pain, Heartache and Hope Website by the author of a book by the same title, where real men and women coping with miscarriage, infertility, stillbirth, and losing a child after birth share their stories. Site includes a Memorial Page and samples of stories from the book. Also a link to an email support group.
  • Parent Soup offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine. Includes sites for abortion loss, miscarriage, and stillbirth among its huge offerings.
  • Parents of Multiples Forever a unique site providing support and resources for parents who experience the loss of one or some of their multiple birth children, either during pregnancy or anytime after birth, including childhood.
  • Perinatal Berievement Services Of Ontario. PBSO provides a variety of unique support services that have been tailored specifically to meet the special needs of perinatally bereaved families. The organization has also grown to include developing and implementing educational training seminars for health care professionals, caregivers, clergy and funeral directors on how to best support these families.
  • Perinatal Loss--Grief Watch offers a full line of products and gift items, from urns to albums, many of which are handcrafted to make them all the more special as remembrances.
  • Preemie Patterns. What a great site to link up with crocheted, knit and sewing patterns for preemie burial pouches and burial gowns. Use the patterns to create these much desired items for your local hospital as a support or as a memorial to your own angel.
  • Pregnancy After Miscarriage News, links, chat, and support for those who are pregnant after having had a miscarriage.
  • Pregnancy After Perinatal Loss. The site for at least 2 research projecdts (one web based and one interview based) conducted by the Universtiy of Louisville Health Sciences Center School of Nursing.
  • Pregnancy and Infant Loss Network (an extension of the SIDS Network, Inc.) has a home page which includes guest book, information, and info on joining a Pregnancy and Infant Loss discussion group, and a SIDS discussion group.
  • Pregnancy Loss site is the personal mission of one parent who experienced pregnancy loss. The site offers: information on Miscarriage, Common Questions, The D&C Procedure, Natural vs. D&C, as well as sections on Your Emotions, Poems, Remembering Baby, Trying Again, Gifts And Keepsakes and Resources And Websites
  • Pregnancy Loss Resources. Includes important local resources for those living in the Bay Area California area, as well as a good information sheet on the kinds of things to think about in the hours, days and weeks that follow a loss.
  • Quilt of Memories. Add your child to this memorial site.
  • RainbowMaker is a "Healing Center" founded after the loss of their first-born son Daniel Ethan. Includes helpful articles, angel pins, book reviews, and much more.
  • Rainbows Down Under - A Trisomy 18 & 13 Resource. A site from Australia which includes info, information on sharing info, links, a Trisomy Listserv, a Trisom 13, Trisomy 14, Trisomy 18 message boards, and much more.
  • Remembering Our Babies. Site devoted to promoting "Pregnancy and Infant Loss Remembrance Day". Tells you how you can get involved in making your country, your state, your community, your household involved in this important remembrance event. See if YOUR state has agreed to proclaim Remembrance Day... make sure you click to "sign the petition."
  • Rich Remembrances. The "Forever Young Child Memorial" is an engraving of the footprints of your child, and he has a special one for those whose child has died (click on "Child Memorial" on his page). The footprints are engraved in brass and are made from a photocopy of the footprints that a hospital often provides.
  • SANDS (SO) (Stillbirth And Neonatal Death Support). Site on the SANDS resources in South Australia. SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth. This site includes book reviews, several issues of their newsletter, events, info on the different reactions between men and women, and a checklist for friends and relatives.
  • SANDS (TAS) (Stillbirth And Neonatal Death Support). Site on the SANDS resources in Tasmania Australia. SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth.
  • SANDS (VIC) (Stillbirth And Neonatal Death Support). Site on the SANDS resources in Victoria Australia. SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth.
  • SANDS (W.A.) (Stillbirth And Neonatal Death Support) of Western Australia. Includes a lot of information, including a section for fathers, poetry, articles from their newsletter, and information on their support meetings.
  • SHARE Atlanta has developed a very nice site of resources, stories of sharing, a memorial garden, links and "Ways to Help Heal." Also includes info on Atlanta-area events of interest. Make sure you check out their section on "Descriptions of Medical Information"--it is EXCELLENT!
  • SHARE's National Office is online with information on the valuable services they offer caregivers and parents whose child has died. Site includes list of upcoming conferences, links, and resources (books, etc.) that Share offers.
  • Sharing Parents of Sacramento is an infant loss support group located in Northern California, affiliated with Share. Includes their newsletter online, as well as an events calendar and information on their services.
  • SIDS Families Support for grieving families who have lost a child to SIDS. Includes postcards, chat room, message board, poetry, advice and suggestions.
  • SIDS Network offers support to those who have been touched by SIDS, links, and a mailing list. The site has really expanded to include an entire series of FAQs as well as an extensive table of contents.
  • SIDS of PENNSYLVANIA contains information regarding support, education and research. It also addresses the "Cribs for Kids" campaign, which has been credited with the drop in infant mortality rates in southwestern Pennsylvania, through the donation of over 2,500 new cribs, mattresses and educational materials to low-income families in the Pittsburgh area.
  • SIDS - The Smallest Angels Memorial Wall lists hundreds of babies who died from SIDS and invites other SIDS parents to do likewise.
  • Silent Grief. This is a website that is promoting 2 books and an audio cd... but most important there is a very large number of articles, stories, and a chat board with over 1000 members.
  • Stepping Stones offers Christian based support, encouragement and information for couples facing infertility or pregnancy loss.
  • Still Born And Still Loved is a small yahoo group for all mothers who have lost a baby due to stillbirth.
  • Stillborn but Welcome, The Short Life of Paul Michael, by Jörg and Mary Barth.
  • Still Fathers. A support site for fathers who have experienced the loss of their children. It includes background information, a meeting schedule for those in the Seattle area, essays, and they have just started a new message board.
  • Storknet's Pregnancy/Infant Loss Cubby. A special site of information and support for those who have experienced infant loss. Currently moderated by grief author Maribeth Doerr.
  • Sudden Infant Death Syndrome (SIDS) Alliance! a national, non-profit, voluntary health organization dedicated to the support of SIDS families, education and research. See the latest research and news regarding SIDS, as well as events in the US focusing on the issue.
  • The Tears Foundation helps needy families in Pierce County, Washington state USA, with the cost of their baby's funeral expenses.
  • Tom Golden's Page on Crisis, Grief and Healing, a web site focusing on Men and Women's Differing Grieving Styles. An incredible list of links!
  • Touching Souls, Healing with Bereavement Photography. Learn about this amazing project (and hopefully someday a book) by photographer Todd Hochberg. Go to "See" section to witness some of this amazing photographic work.
  • TX Moms of Tiny Angels is a fairly new Texas organization providing education, emotional and educational support, providing "survival kits" to parents and suggestion packets to funeral homes. Site includes a "parents corner" with Recommended Reading, Websites, Support Groups, Creating Memories, Parent's Wish List, and info on Getting Through The Holidays.
  • Waiting With Love is for parents who choose to continue a pregnancy after learning their unborn baby will die before or shortly after birth and for parents who learn their newborn will die soon. Site includes parent letters, resources, and sample birth plans.
  • We will hold you in Heaven Support Group is an online "Yahoo groups" support group for anyone who has lost an angel due to SIDS/OID, miscarriage, eptopic pregnancy, or early child death and is looking to give and recieve support....
  • Wintergreen Press is the website of well-known perinatal loss speaker and author Sherokee Isle. The site is still fairly new, but it promises to hold a lot of information in the future, including "action items" and "resources and how-tos."
  • Wisconsin Stillbirth Service Program is a large site which includes many links, information on stillbirth, an on-line newsletter and educational resources. Excellent.

If you find a bad link, or one that you think I should consider to be added, please don't hesitate to e-mail me with the pertinent information.

PERSONAL INFANT LOSS/MISCARRIAGE REMEMBRANCE SITES

  • C. Elizabeth Carney's personal site related to her miscarriage and her "12 Truths". Also includes "A Mother's Prayer / Affirmation After Miscarriage."
  • Dedication Page to Tyler Branden Lotz is a wonderful personal site that incorporates their own story with pictures, poetry, links, and a place where others can leave a memorial on the Memorial Wall.
  • For the Love of Riley. Another "personal web page" that is well worth a visit.
  • Heavenly Treasures. Here you will find a very touching story and poetry written by Amy Michelle Wilson which tells how she and her family have managed to survive the loss of three of their four boys, and one of their twin girls, over a thirteen-year period of time—each dying just days after birth, and each death caused by an extremely rare genetic disorder known as NKH.
  • In Loving Memory of an Angel. A lovely personal remembrance page for Christopher Shane Chisholm.
  • In Loving Memory of Ethan Paul Miller. Personal story, poetry, and pictures dedicated to Ethan, born 4-15-04, died 5-27-04
  • In Loving Memory of Matthew Kristopher Mosquera. Another personal website that gives you a very good idea of how nicely a remembrance site can be.
  • Love Never Dies -- A Tribute to Geordi is a personal site dedicated to an 18-month old who died after surgery to correct a congenital heart defect. Includes support information at the very bottom of the page, including how her parents coped with her death. From this site you can link to the "Congenital Heart Disease Ring."
  • Michaela's Hope a web site dedicated in memory of our precious angel, Michaela Hope Bucher, and all babies with Anencephaly. A personal page telling the story of her birth, her journey home, and her death--a short life filled with love from her family.
  • Sahara and her friends in Heaven started as a personal site in remembrance of Sahara Kegley, who lived only two hours. But it has turned into much more with chat area, remembrance pages, and a list of people available by email for those who need to talk to someone.

RELATED TOPICS

  • A Heartbreaking Choice, for parents who have interrupted a pregnancy after prenatal diagnosis revealed serious fetal anomalies. It includes a listserv mailing list option.
  • Abortion - Post Abortion Stress Syndrome Support is a non judgmental place for women who have had abortions to find support and recovery for their loss. This is a place for healing and strives to be "politically neutral", and so it does not allow the political issues of abortion to enter its chat rooms.
  • About.com's Guide to Infertility is an extensive site focusing on all issues related to infertility, including Pregnancy Loss and A Pregnancy After Infertility or Loss.
  • Aicardi Syndrome web page. Web site for the Aicardi Syndrome Foundation with inforamtion, stories, and links.
  • Always Loved, Never Forgotten. Newsletter/Support group for anyone who has ever lost a child of any age.
  • American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), includes news, information on meetings, library/review lists, information on research, and will soon be premiering their discussion group.
  • American Psychiatric Association site is primarily for its professional members rather than for the public.
  • American Psychological Association web site includes a large section for the public dealing with many topics of interest, including depression.
  • Anencephaly Support Foundation provides information, personal stories, and medical articles regarding the neural tube defect of anencephaly.
  • APERT Syndrome. Information site.
  • Ask NOAH About: Pregnancy and Childbirth Problems & Risks. If you can't find it on this list you have a rare question indeed! I counted over 300 categories/links on their list!
  • At Health, Inc. includes excellent brief overviews of such mental health issues as bereavement, depression, stress and anxiety. Also includes names of mental health professionals around the United States who deal with such issues.
  • BabySteps is a a resource canter for parents and children who have lost a child or sibling of any age, and also provide a place of comfort. Sometimes I have trouble loading the front page, but once inside you will find a Sharing Room (one for kids, one for adults, and one for professionals), a brand new remembrance section (for children of any age), and a wonderful section with short reviews of over 65 books related to grief and loss of a child. (Note: if all else fails and you can't get through the main door, try http://www.babysteps.com/rrmainframe.html, which is the resource page.)
  • Birth Defects Research for Children. Provide comprehensive fact sheets about birth defects, as well as other information. Also provide parent matching opportunities and information resources, including books and links or participate in the National Birth Defect Registry.
  • Bruderhof Grief Companion. Everyone grieves differently. But no one needs to carry grief alone. Whatever loss you are grieving, here you can share your loss with others, and find material that other grieving people have found helpful and comforting. Grieving takes time. Take time to grieve.
  • Bryan's Kidney Page A page about pre-birth kidney failure and options other than termination. This page is a personal story but it is so much more with an incredible amount of important links for all kinds of special needs.
  • Cerebral Palsy. A wonderful overview of cerebral palsy in an article titled "When Your Child Has Cerebral Palsy" on the KidsHealth.org website.
  • CHARGE association (or syndrome) is an acronym referring to children with a specific pattern of birth defects. The acronym is: "C" for coloboma, "H" for heart defects, "A" for atresia choanae, "R" for retardation of growth and development, "G" for genitourinary problems, and "E" for ear abnormalities. Information site.
  • Cherubs is the official site of The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support. Extensive site. Lots of information. Fun graphics. Bulletin boards and program information. Information also available in Spanish, French, Portugues, Italian, and German.
  • Children's Disability List of Lists is a current, annotated list of mailing lists for families of children with disabilities and special needs...and there are hundreds covered!
  • Cleft Palate Foundation. American Cleft Palate-Craniofacial Association/Cleft Palate Foundation site. Information sides for both parents and for caregivers/health professionals. Also a site in Spanish.
  • Complications and Medical Problems in Pregnancy. Over 50 different categories to choose from all the way from "Caffeine can cause miscarriage" to "Fibroid tumours" to "I want a baby but I'm epileptic". Check it out...
  • Complications of Pregnancy. Quite extensive pregnancy site of Robin Elise Weiss, Childbirth Educator (and who has had seven pregnancy losses) which includes this section on pregnancy complications.
  • Crouzon Support Network. An organization for individuals and families who are dealing with Crouzon Syndrome and other cariofacial anomalies.
  • Cystic Fibrosis Foundation, Offers extensive information and referrals to local chapters, support groups, medical information and a newsletter.
  • Depression After Delivery, Inc. is a national nonprofit organization that provides support for women with postpartum depression.
  • Dougy Center, The National Center for Grieving Children and Families, provides support and training locally (Portland OR), nationally and internationally to individuals and organizations seeking to assist children and teens in grief.
  • Down's Syndrome: For Parents Includes questions and answers, reading list, stories, a forum, web rings and list of resources.
  • Ectopic Pregnancy Trust. Find out about the symptoms of an ectopic pregnancy and how they happen and read our answers to your most frequently asked questions. Read about chlamydia trachomatis, our diagnosis guidelines and our recommended books and other websites.
  • Emergency Child Birth. (Steps to Take In an Emergency Child Birth Situation). Here are some of the basics in a step by step format on what to do in various emergency birth situations... when not to transport a mother; what do do if the baby is delivering; what to do with the placenta; should you cut the cord?. Also talks about what to do in post and pre delivery emergencies such as multiple birth, umbilical cord accidents; wedged shoulders, breech birth; and excessive bleeding.
  • Empty Arms UK. This site is for women dealing with Endometriosis and Infertility. It is designed as a means of support, encouragement. Includes information, forums, guestbook, articles, stories, links and web rings.
  • Esophageal Atresia Index. The purpose of the web site is to provide information to the families of babies suffering from
    Esophageal Atresia and Tracheoesophageal Fistula, as well as to health care providers who would like to review their treatment.
  • Family Village is a "global community of disability-related resources."
  • Fertile Thoughts is a site focusing on infertility, surrogacy, pregnancy and adoption.
  • Fernside is a beautiful site for grieving children and their families: "we know that the grieving child has the capacity to rebuild, so we gently encourage sharing of stories, feelings and memories with trusted friends, honoring each one's search for a new beginning." Includes a kids area, grownup area, and resources.
  • Fetal Alcohol Syndrome. Some straight talk facts about Fetal Alcohol Syndrome--dispelling the myths.
  • fetal-surgery.com Information regarding fetal surgery for spina bifida.
  • Fetal Treatment Center at UCSF Children's Hospital is a world leader in diagnosing and treating birth defects, using advanced therapies including fetal surgery. They have an extensive website including information on prenatal diagnosis.
  • Genetic Alliance includes a Directory of National Genetic Voluntary Organizations (list of over 300 support groups).
  • God's Little Ones. This artist creates incredibly lifelike dolls for people to remember their babies. The dolls range in gestational age from 6 weeks to full-term. The artist is a mother of a miscarried baby born at 8 weeks gestation, and preemie twins born 8 weeks early. The portrait dolls on this site were all made at the request of the parents of these real children. A couple warnings: first the site may be very slow to download as it is full of pictures and graphics. Secondly, this site is decidedly pro-life. And, thirdly, the images are very real and life-like (made from resin) and may be very intense for persons who have lost their infants through miscarriage or stillbirth.
  • Good Grief Rituals gives support for parents with poor prenatal diagnosis prior to birth and after-support. Poetry, personal stories, remembrances, support groups are just a few areas in this site.
  • Grief Net. A "general" grief site which includes: library; bulletin board; resource center; links to emergency services and a shopping mall.
  • Grief Resources. A site which offers the general grief resources of several companies. The video / audio offerings look especially promising, and there are cards as well as several book/booklets on specific grief topics.
  • Group B Strep Association
  • HER Foundation is a non-profit organization dedicated to hyperemesis gravidarum (HG) research and education and to those suffering from HG or those who have survived it.
  • HGSurvivor.org is a website that is dedicated to women and families who are suffering, or have survived, Hyperemesis Gravidarum (HG). HG is a severe form of dibilitating morning sickness that occurs in approximately 2% of all pregnacies.
  • High Risk Situations and Complications in Pregnancy. A sub-section of the OnLineBirthCenter, there are links here to many kinds of high risk situations including: Screening & Testing; Violence & Sexual Abuse; HIV and AIDS; Group B Strep; Preeclampsia; Drugs, Alcohol, and Pregnancy; C-Section and VBAC, etc.
  • Hoping Skills Company. Lots of sympathy gifts to help children and adults cope with grief and loss.
  • IVF.com Endometriosis Homepage. A wealth of information on infertily, in vitro fertilization, endometriosis. Includes chatline, guestbook, FAQs, bookstore.
  • INCIID The International Council on Infertility Information Dissemination. If you are seeking information on infertility, this is a great place to start since it is the largest (they claim over 4 million hits per month). Includes fact sheets, several bulletin boards, links, and a directory of physicians, therapists and attorneys. Includes experts who are online at specified times to answer consumer inquiries.
  • Infertility Blues. A Mind/Body Approach to Help Women Cope with Infertility and Enhance Fertility.
  • Infertility Home on the Net is a couple's guide to overcoming infertility.
  • Internet Resources for Special Children. A "links" site which connects you via internet to sites from autistic spectrum disorders to rare disorders such as prader-willi syndrome, schizencephaly, and everything inbetween: blind & visually impaired; brain injuries; congnitive disorders; communication disorders; deaf & hearing impaired; diseases such as diabetes and conditions such as cleft lip; learning disabilities such as ADD and dyslexia; musculoskeletal disorders such as dwarfism; to neurological disorders such as cerebral palsy and epilepsy; many others.
  • Journey of the Hearts, a Healing Place in Cyberspace is an all-encompassing site focused on general grief. It's sections on loss, coping, and on how to help someone else who is grieving are well worth a visit to the site. It also has a very extensive resource section on medical information links on a huge range of topics.
  • Julia's Journey with Spina Bifida. Includes personal stories, information, and links on Spina Bifida and Hydrocephalus.
  • Labor of Love Pregnancy and Parenting Search Engine is a search engine devoted specifically to pregnancy-related issues and includes links for High Risk, Loss Support and Miscarriage among many others. Includes large book lists on topics of interest and information articles, i.e. ectopic pregnancy.
  • The Langer-Giedion Syndrome Association supports families affected by the Trichorhinophalangeal Syndromes (I, II, & III) and works with medical specialists to promote research. This website includes a discussion board and article abstracts in addition to links.
  • Lifelike Sculptures. Jennifer makes original, one of a kind baby sculptures. She take custom orders for sculptures of babies based on photos and centered on a celebration/honoring of babies before and after birth. She began sculpting after losing quintuplets, born at 23 weeks gestation, so her heart is definitely in what she does. The sculptures are not inexpensive, but seems more than reasonable for the incredible works of art that she produces.
  • Living With Heart is for people who are working to put their lives back together after the chaos of trauma; who want to move past the grief trauma causes and rebuild a life of meaning and joy.  This is a place for people to come together to find hope and encouragement, to share knowledge and wisdom, and to learn.
  • Living with Trisomy 13. This site focuses on bringing the families of beautiful Trisomy 13 ( Patau Syndrome) children together. Sharing their stories of living and growing in love in the challenges of raising a Trisomy 13 child. It is our wish that the photos will bring great HOPE, Support and inspire those visiting the site.
  • Loss On-Line Support is an ezine published monthly by Koto Press, who also publishes several loss books. The have the loss ezine issues available for you to peruse. And, if you click on the "Mrs. Duck Project" you will be treated to the story in a Flash version and in an html version as well as learn how to become a participant in the Mrs. Duck Project.
  • Male Infertility MDs. A index site to help you find a male infertility specialist closest to you. Also includes some basic info on maile infertility.
  • March of Dimes Birth Defects Foundation, Offers information, referrals and education on many prenatal, pregnancy and child related issues to improve the health of babies by preventing birth defects and infant mortality. Local chapters throughout the country.
  • Monoamniotic Monochorionic Support Site. The web site for expectant and experienced parents of monoamniotic twins, formed by experienced and expectant parents reaching out to each other to help support each other through the difficult times. Includes great explation of monoamniotic twins, as well as lots of links to important medical as well as lots of support sites.
  • Multiple Birth Prenatal Education & Bereavement Support. This Web Site offers information regarding multiple births. It includes pregnancy and post-natal information and, from the point of view of new parents, it attempts to address some of your questions and concerns. Although a joyous time, there are sometimes risks in multiple births. Hence this Web Site also offers bereavement support for parents who have lost one, more or all of their multiple birth children during pregnancy or in infancy.
  • Multiple Birth Resources Updates, information on video education and on MBR classes.
  • MUMS National Parent-to-Parent Network is a non-profit support organization for families of children with rare disorders or medical conditions and also for service providers who assist these families. Parents are matched or sent a list of other parents whose children have the same or similar diagnosis ($5.00). MUMS' database has over 18,000 families registered from 54 countries and represents over 3000 rare or not so rare disorders or medical conditions.
  • National Adoption Center A non-profit organization whose mission is to expand adoption opportunities throughout the United States for children with special needs and those from minority cultures.
  • National Adoption Information Clearinghouse, a federally-funded one-stop resources for information on all aspects of adoption.
  • National Catholic Ministry to the Bereaved.
  • National Information Center for Children and Youth With Disabilities is an information clearinghouse that provides information on disabilities and disability-related issues. Children and youth with disabilities are a special focus.
  • National Institute for Trauma and Loss in Children (TLC) Parents Trauma Resource Center. TLC's Parents Trauma Resource Center is an excellent site for parents and caregivers to easily find detailed information about grief and trauma as well as ways to help themselves and their children.
  • OB Focus. Well here is a site that every hospital should consider building. Devoted to prenatal diagnosis, management of medical complications of pregnancy and management of complicated pregnancy they have built a most incredible site of information and helpful tools to pregnant parents. Includes everything from naming and birthstones all the way to explanations of blighted ovum, placenta accreta, RH disease, etc., etc. Wonderful work San Gabriel Valley Perinatal!!
  • Parent Soup offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine. Includes sites for abortion loss, miscarriage, and stillbirth among its huge offerings.
  • Paternity Angel. Someone HAS done an entire (and complete) website for MEN and pregnancy! If your significant other is pregnant you have got to bookmark this page!
  • Polycystic Ovarian Syndrome Association. The website for the POSA, a a national nonprofit organization operated by women with Polycystic Ovary Syndrome. Includes information on the syndrome, a quiz help narrow in on symptoms, email lists/chats/discussion boards, and info on regional and national coferences regarding POS.
  • Potter's Syndrome. A website devoted to Potter's Syndrome (renal agenesis), one of several serious or fatal kidney abnormalities. In Potter's (or Potter) syndrome the baby's kidneys do not develop in the first few weeks of life in the womb. They have an online support fourm is http://forums.delphiforums.com/potterssyndrome/start
  • PPD Support Group. Includes information, stories, forum, chat group, support info, contact information, and online support for those suffering from postpartum mood disorders.
  • Preeclampsia Foundation. A non profit organization dedicated to funding research, raising public awareness, and providing support and education for those whose lives have been touched by preeclampsia and other hypertensive disorders of pregnancy.
  • Pre-eclampsia site. Information about Pre-eclampsia, Eclampsia and HELLP Syndrome. This is a very personal site, with many true stories, pregnancy diaries, special babies, a very supportive email discussion group and much more including memorials for losses due to pre-eclampsia, eclampsia or HELLP Syndrome as well as the stories of those babies who have beaten these conditions. Site based in the United Kingdom
  • Pregnancy and Asthma. If you are pregnant and have asthma, this is an important site. Includes why it is important to control asthma during pregnancy and asthma treatments during pregnancy. Also has a FAQ.
  • The Pregnancy Institute, Inc., is a non-profit organization created to study normal pregnancies. It is designed to promote the likelihood of healthier pregnancies resulting in well monitored, full-term live births. Has strong emphasis on Umbilical Cord accidents and currently has at least 5 Case Studies going on.
  • PregnancyMD is a site which offers both free advice as well as paid fee services for those who are struggling with issues of infertility. Includes fact sheets, support groups, links page, a list of worldwide fertility centers, and free newsletter.
  • Problems During Pregnancy. WOW--what a wonderful resource of the Medybiz.com website! Talks about the most common problems such as itching and backaches, all the way to such special issues as ectopic pregnancy, gestational diabetes, to placenta previa.
  • Rachel's Vineyard. Site is for any person who struggles with emotional and spiritual pain of past abortion(s). Offers information, training and publications, and sponsors what we feel are weekend workshops around the United States (we counted 40 state locations) and 7 other countries.
  • Ramah is a nonprofit site ministering to those suffering from Post-Abortion Syndrome (PAS). This site is not position neutral (it is pro-life), but it is a valuable site for those who who are looking for support and resources in an effort to restore shattered lives.
  • Safe Haven is a place for healing from the trauma of abortion. Although the site says that they are not going to debate legality, morality or the religious ethics of abortion, please be aware that this site is definitely leaning to the pro-life side. However, having said that, it is an excellent site offering information on Post-Abortion Syndrome, provides crisis pregnancy information, offers a moderated bulletin board, and includes a section fo