Genetic Issues
(Underlined/highlighted books are available from the A Place To Remember www bookstore.)

A Time To Decide - A Time To Heal, for parents making difficult decisions about babies they love, edited by Michigan State University, 1990. Pineapple Press, St. Johns, MI. Also available from A Place To Remember, (800) 631-0973. This book was specifically written by bereaved parents who had to make difficult decisions after diagnosis of fetal anomaly, so that other parents who follow in their footsteps know that they aren¹t alone in their decision-making and healing.

Beyond Prenatal Choice, Virginia Carson, 1988. Beyond Choice Support group, Baltimore MD/Washington, DC. This small pamphlet was compiled by several genetic counselors, a psychologist and two social workers to help parents who face difficult decisions following a diagnosis of fetal abnormality during pregnancy.

Difficult Decisions, Marv and Joy Johnson. Centering Corp., 1531 N. Saddle Creek Rd., Omaha, NE 68104-5064, (402) 553-1200. A small booklet designed specifically for parents who receive a prenatal diagnosis showing that their unborn baby has a medical problem and the feelings surrounding the difficult decisions that must be made.

Embracing Laura, Martha Wegner-Hay, 1998. Centering Corp., Omaha, NE. Also available from A Place to Remember, (800) 631-0973. A story of grief and joy after the discovery of twins, where the survival of one was jeopardized by the life of the other, and the painful choice was made for selective reduction.

The Gene Doctors Medical Genetics at the Frontier, Yvonne Baskin, 1984. William Morrow and Co, New York, NY.

Genetics in Obstetrics and Gynecology, Joe Leigh Simpson, 1980. Grune and Stratton, New York, NY.

Precious Lives, Painful Choices: A Prenatal Decision-Making Guide, Sherokee Ilse. Wintergreen Press, Maple Plain, MN. Also available from A Place to Remember, (800) 631-0973. A comprehensive, balanced guide to assist families in their struggle to cope with abnormal prenatal results, decide what to do and then survive.

The Genetic Connection, David Henlin and Joan Markes, 1979. The New American Library Inc., New York, NY. A basic book about genetics for parents, including an extensive listing of genetic counseling centers.

Waiting With Gabriel, Amy Kuebelbeck, 2000. Loyola Press. When Amy Kuebelbeck was five and a half months pregnant, she was told that the child she was carrying had a fatal heart condition. She and her husband were then faced with an impossible decision: give their baby a chance at live--and with it, enormous pain and suffering--or let their baby die naturally, shortly after birth. The unforgettable journey that ensued would change not only their lives, but also the lives of everyone who came in contact with them. Now the story is captured in Waiting with Gabriel: a story of cherishing a baby’s brief life. Richard Paul Evans, author of The Christmas Box and The Last Promise says this about Waiting With Gabriel: ”Kuebelbeck writes about the unthinkable, and does it with beauty, grace, and a profound understanding of the true meaning of death as it relates to the living. It is a mother’s goodbye kiss...heartbreaking, life-affirming, and wise.”