Special Needs Infants
(Underlined/highlighted books are available from the A Place To Remember www bookstore.)

A Parent's Guide to Autism, Charles A. Hart. Available from the La Leche League International, (847) 519-9585. More misinformation than fact abounds about this neurological disorder, and parents are often bewildered by their child's diagnosis. In question and answer format, this book offers clear and reassuring advice to the parents of a child who is autistic. Chapters address possible causes, symptoms, treatment, and education options.

A Special Kind of Parenting, Julia Darnell Good and Joyce Good Reis. Available from the La Leche League International, (847) 519-9585. This book guides parents through the challenges of dealing with the special needs handicapped children have. It helps parents discover their handicapped child as an individual and provides suggestions on how to get through initial diagnosis, the grieving process, and the effects on the family.

After the Tears: Parents Talk About Raising A Child With A Disability, R. Simons, 1987. Harcourt Brace, Orlando, FL.

Babies With Down Syndrome, Karen Stray-Gunderson, editor, 1995. Woodbine House. Part of the "Special Needs Collection", this second edition is straightforward and compassionate, full of insight for families to become more confident in their ability to cope. Covers areas such as: diagnosis, medical treatment, emotions, daily care, family life, special education and legal rights.

Breastfeeding Special Care Babies, Sandra Lang, 1996. WB Saunders Company. A comprehensive guide for the breastfeeding of babies with special needs, including lactation positioning, expressing, and a full range of breast conditions and how to treat them. Includes informative drawings and photographs. Good reference section.

Children With Special Health Needs; A Resource Guide, S. Spisak and O. Pickett, editors, 1993. National Center for Education in Maternal and Child Health, 2000 15th Street North, Suite 701, Arlington, VA 22201-12617, (703) 524-5802, or Fax (703) 524-9335.

Communication Skills In Children With Down syndrome: A Guide For Parents, L. Kumin, 1994. Woodbine House, Rockville, MD. Home Care for the Chronically Ill or Disabled Child, M.L. Jones, 1985. Harper & Row, New York, NY.

Home Care for the High-Risk Infant: A Family-Centered Approach, Elizabeth Ahmann, 1996. Aspen Publishers, Gaitherburg, MD, (800) 638-8437. A comprehensive book with entries by prominent authors/leaders in children's healthcare research and family support. Covers a variety of topics including: medical and developmental profiles, family issues, ethical issues, transitions, etc. Complete with useful checklists, care plan samples and recommended resources.

If Your Child Has a Congenital Heart Defect, American Heart Association, 1991. American Heart Association, Dallas, TX. (Call your local AHA office to request this booklet.)

In Time and With Love: Caring for the Special Needs Baby, M. Segal, 1988. Newmarket Press, New York, NY. A sensitive book of advice for parents of pre-term and handicapped children, with more than 100 practical tips on care and development. Covers the first three years of development. Illustrated.

Keys to Parenting a Child With down Syndrome, M. Brill, 1993. Barron's Educational Series, Hauppauge, New York, NY.

Living with a Brother or Sister with Special Needs: A Book for Sibs, Donald Meyer and Patricia Vadasy, 1996. University of Washington Press, Seattle, WA, (206) 543-4050. This revised edition focuses on the intensity of emotions that siblings experience when they have a brother or sister with special needs. Offers suggestions for how to make life easier for everyone in the family, and discusses many specific disabilities and relevant issues. Offers an extensive bibliography.

Living with Chronic Illness: Days of Patience and Passion, C. Register, 1987. Free Press/Macmillan, New York, NY.

Making Medical Decisions, T. Scully and C. Scully, 1989. Simon & Schuster, New York, NY.

Nursing Your Baby With A Cleft Palate or Cleft Lip, Sarah Coulter Danner and Edward R. Cerutti. Childbirth Graphics, Waco TX. Available from A Place to Remember, 1885 University Ave., #110, St. Paul, MN 55104, 1-800-631-0973. A 12-page booklet which lovingly guides a mother through the proper ways to breastfeed.

Nursing Your Baby With Down Syndrome, Sarah Coulter Danner and Edward R. Cerutti. Childbirth Graphics, Waco TX. Available from A Place to Remember, 1885 University Ave., #110, St. Paul, MN 55104, 1-800-631-0973. A 12-page booklet which lovingly guides a mother through the proper ways to breastfeed.

Nursing Your Neurologically Impaired Baby, Sarah Coulter Danner and Edward R. Cerutti. Childbirth Graphics, Waco TX. Available from A Place to Remember, 1885 University Ave., #110, St. Paul, MN 55104, 1-800-631-0973. A 12-page booklet which lovingly guides a mother through the proper ways to breastfeed.

Nursing Your Premature Baby, Sarah Coulter Danner and Edward R. Cerutti. Childbirth Graphics, Waco TX. Available from A Place to Remember, 1885 University Ave., #110, St. Paul, MN 55104, 1-800-631-0973. A 12-page booklet which lovingly guides a mother through the proper ways to breastfeed.

Ordinary Families, Special Children: A Systems Approach to Childhood Disability, M. Seligman, and R.B. Darling, 1989. Guilford Press, New York, NY.

Parenting Plus: Raising Children with Special Health Needs, H. Featherstone, 1981. Basic Books, New York, NY.

Special Care Babies and Their Developing Relationships, Anne McFadyen, 1995. Routledge (foreign publisher).

Strategies for Working With Families of Young Children with Disabilities, Paula J. Beckman, editor, 1996. Brooks Publishing Company, Baltimore, MD (800) 638-3775. This book helps teachers, healthcare providers and other caregivers improve their ability to support children and families, and fosters personal growth as well. Specific techniques, case studies, and practice questions and activities are provided.

The Angel with the Golden Glow: A Family's Journey Through Loss and Healing, Elissa A Al-Chokhachy, Ulrike A. Graf, 2001. Penny Bear Publishing. Based on a true story about a family whose first child was born with a rare genetic disorder. His family showered him with love, not knowing how long he would survive. They celebrated his life and savored every moment they shared. A book for children (4-8) and adults.

When Your Child is Deaf, D.M. Luterman, 1991. York Press, Parkton, MD.

Whole Parent, Whole child: A Parents' Guide To Raising a Child with a Chronic Illness, P. Moynihan, 1989. Chronimed, Minnetonka, MN.

Your Child's Medicines: Advice For Families of Children With Special Needs, R. Bindler, et al, 1996. Intercollegiate Center for Nursing Education, Spokane, WA.

Your Premature Baby Comes Home: A Pediatrician's Guide to Caring, Feeding, and Development, Paul, Md Fleiss, Juliette M. Alsobrooks (Contributor), 2001. Contemporary Books.