High Risk Pregnancy / Premature Infants

A Child of Promise. A ministry of the First Evangelical Free Church, 1375 Carman Rd, Manchester MO 63021; 636-227-0125. A Child of Promise is a support group aimed at encouraging families to continue their pregnancy following an adverse pregnancy diagnosis. They currently providing individual counseling, and would like to eventually provide a monthly or bi-monthly support group meeting as we have enough families. A Child of Promise is a Christian organization, but is open to those of all faiths and to both mothers and fathers. They have a strong internet support program at http://www.cmm-stl.org/acop .

Abiding Hearts, P.O. Box 904 Libby, MT 59923; (406) 293-4416, FAX:406-587-7197. A support system for parents continuing pregnancy after prenatal diagnosis of fatal (or non-fatal) birth defects; unplanned pregnancies included. Also a newsletter for parents who choose to carry a baby with a genetic defect to term. A $5 donation is requested to help defray mailing costs.

American Association for Premature Infants (AAPI), PO Box 46371, Cincinnati, OH 45246, (513) 956-4331. An Ohio-based non profit advocacy organization dedicated to improving the quality of health, developmental and educational services for preamture infants, children and their families.

American College of Obstetricians and Gynecologists, 409 12th Street SW, PO Box 96920, Washington DC 20024, (202) 638-5577. Will provide referrals to licensed OB/GYN clinics, as well as be able to refer OB/GYNs who have expertise with high-risk pregnancies.

Beach Center on Families and Disabilities, 3136 Haworth Hall, 1200 Sunnyside Avenue, The University of Kansas, Lawrence, KS 66045-7534, (785) 864-7600, Fax (785) 864-7605. Offers free newsletters, other publications and fact sheets for a nominal fee. Also maintains a national directory of parent-to-parent programs for families with special needs children, including NICU babies.

Group B Strep Association, PO Box 16515, Chapel Hill, NC 27516 (919) 932-5344. GBS is a non-profit group of information and support-to create awareness, promote testing and treatment of GBS, and to generate vaccine research. World Wide Web site address is: http://www.groupbstrep.org

High Risk Moms, PO Box 389165, Chicago, IL 60638-9165, (708) 515-5453. A support group for and quarterly newsletter for those experiencing problem pregnancies. They provide perinatal telephone contact with moms who have experienced similar situations.

Le Petite Baby, 1915 SE 34 th Avenue, Portland, OR 97214-5709, 1-800-767-9374. Specializing in premature infant (under 7 lbs) apparel.

National Center for Clinical Infant Programs, 2000 14th Street North, Suite 380, Arlington, VA 22201-2500, (703) 528-4300. Professional organization. Publishes a professional bi-monthly bulletin.

Neo-Fight, PO Box 17715, Indianapolis, IN 46217. 317-446-3013 (answered 24/7). 24 hour call line. Listener support for families experiencing high-risk pregnancy, premature or critically ill newborn, fetal or infant death. Hold monthly meetings in Carmel area and put out quarterly newsletter. Website: http://www.neofight.org . Email contact for info: Richard@neofight.org

Parents of Preemies Incorporated, Washington, DC 20007, (202) 625-8406. Local support organization in the DC area.

Partners in Intensive Care, 5069 Overlook Road NW, Washington DC 20016, (202) 363-7480, Fax (202) 363-4659. Partners in Intensive Care's mission is to help families better cope with and understand the intensive care experience and to enable families to confidently care for their babies through programs of support, education, and advocacy.

Sidelines National High-Risk Pregnancy Support Network, P.O. Box 1808, Laguna Beach, CA 92652, toll free (888) 447-4754. A national network of volunteers offering support, education, advocacy and resources to families dealing with high-risk pregnancies. They publish a magazine, LeftSide Lines. To request support or information, or to order the magazine, call toll free (888) 447-4754.

The Confinement Line, c/o Childbirth Education Association, PO Box 1609, Springfield VA 22151, (703) 941-7183. Offers a support line and newsletter for women on bedrest. They also offer assistance to individuals who are seeking to start a support network in their own community.