Infant Death Support Groups and Literature

A Place To Remember, a division of deRuyter-Nelson Publications, 1885 University Ave., #110, St. Paul, MN 55104, 1-800-631-0973. Sells birth/death announcement cards, comfort/sympathy cards, anniversary/special day cards, baby memory box and memory book, books on the topic of perinatal loss, and other support materials.

Abiding Hearts, P.O. Box 904 Libby, MT 59923; (406) 293-4416, FAX:406-587-7197. A support system for parents continuing pregnancy after prenatal diagnosis of fatal (or non-fatal) birth defects; unplanned pregnancies included. Also a newsletter for parents who choose to carry a baby with a genetic defect to term. A $5 donation is requested to help defray mailing costs.

A.G.A.S.T. (Alliance of Grandparents Against SIDS Tragedy), PO Box 17281, Phoenix, AZ 85011-0281, 602-604-8462, 888-774-7437; Fax 602-604-8461. Volunteer organization to work with grandparents. Newsletter available.

AMEND (Aiding a Mother [& Father] Experiencing Neonatal Death), Maureen Connelly, 4324 Berrywick Terrace, St. Louis, MO 63128, (314) 487-7582; Martha Eise, 1559 Ville Rosa Hazelwood, Mo. 63042, 314-291-0892; or Jane Borman, 2209 Gillis Alton, Illinois 62002, 618-466-7129. Coordinates one-on-one peer phone counseling for parents who need understanding and caring through others listening.

AMEND (Aiding Mothers Experiencing Neonatal Death) of Tampa Bay FL, Program Director Karen M. Frazier, RN, (813) 631 9519. Counseling support and meetings monthly in Tampa Bay area--call for place and time.

American Psychiatric Association, 1400 K Street NW, Washington DC 20005, (202) 682-6850. Provides referral information about Licensed Psychiatrists in your area. - http://www.psych.org

American Psychological Association, 750 First Street NE, Washington DC 20002-4242, (202) 336-5500; 1-800-964-2000. Will use your zip code to locate and connect you with the referral system in your area (US and Canada).

An Ache In Their Hearts, University of Queensland, Department of Child Health, Clarence Court, Mater Children's Hospital, South Brisbane, QLD 4101 Australia, (07) 840-8154 or FAX (07) 844-9069. A complete and comprehensive intervention program for communities to support families affected by miscarriage, stillbirth and infant death. The package includes training programs and instruction manual.

Angel Babies Forever Loved, PO Box 3196, Boynton Beach, Florida 33424. A non-profit group established to support grieving parents of infants, whether from miscarriage, stillbirth, neonatal loss, or SIDS.

Bebitos Angelitos - Angel Babies of Hinds Hospice. Based in Fresno, CA. Angel Babies is composed of a perinatal hospice program and a bereavement program. Perinatal hospice provides support and anticipatory guidance to families who have a baby diagnosed with a life limiting condition during pregnancy. The program assists families to both welcome and enjoy their baby and when necessary to say good-bye. Information discussed includes normal anticipatory grief reactions; birth planning; creating memories; including other children and family members; birth/death announcements; memorial/funeral service planning, visitations, and much more.The bereavemnt program provides supprt to families that have had a baby die in pregancy or infancey stage and includes individual and couples counseling. Support groups are also available to families to include siblings. Angel Babies Program Coordinator , Hinds Hospice Angel Babies , 1616 West Shaw Avenue B-6 , Fresno, CA 93711; 559.226.5683. Website: http://www.hindshospice.org

Bereaved Parents USA, PO Box 95, Park Forest, IL 60466, (708) 748-7672. Provides a network of peer support groups, a newsletter, resources, and special help to parents who have lost a child.

Centering Corporation, PO Box 4600, Omaha, NE 68104, (402) 553-1200; Fax (402) 553-0507. Sells literature on death, dying, and coping with bereavement issues, including infant loss, divorce, illness, disability, death of children, adults and pets. Catalog available by request.

Centre for Reproductive Loss, PO Box 282, Station Cote St. Luc, Montreal, Quebec Canada H4V 2Y4, (514) 486-6708. Provides professional support services to those persons who have been touched by the pain of infant loss. Services include Counselling; referral, follow-up, support groups, telephone contact, info, and educational programs.

CLIMB, Inc., (Center for Loss In Multiple Birth, Inc.), c/o Jean Kollantai, P.O. Box 91377, Anchorage, AK 99509, (907) 222-5321. A support network by and for parents who have experienced the death of one or more, both or all babies from a twin or higher multiple pregnancy, during pregnancy, at or after birth, or in childhood. E-mail address is: climb@pobox.alaska.net.

Compassion Books, 7036 State Hwy. 80 South, Burnsville, NC 28714; 828-675-5909; toll free 1-800-970-4220. Over 400 resources to help children and adults through serious illness, death, loss, grief and bereavement. Catalog available by request.

The Compassionate Friends, Inc., National Headquarters, PO Box 3696, Oak Brook, IL 60522-3696, (630) 990-0010 or FAX (630) 990-0246; toll-free 1-877-969-0010. A self-help organization of bereaved parents with many local chapters. For families who have had a child of any age die from any cause.

The Compassionate Friends of Canada, 685 Williams Avenue, Winnipeg, Manitoba, Canada R3E 0Z2, (204) 787-4896. Mutual assistance groups for bereaved parents and siblings for the loss of a child at any age.

The Empty Cradle, (619) 595-3887. A local support group for parents in the San Diego CA area who have experienced the loss of a baby due to miscarriage stillbirth or infant death. The telephone number (619) 595-3887 is available 24 hours a day--leave your name and phone number and a parent contact will return your call as soon as possible. The group holds monthly group meetings, have a lending library, a newsletter, and individual telephone support.

The Empty Cradle Foundation, PO Box 90604, Henderson NV 89009.

Friends Supporting Parents, PO BOX 71912, Madison Heights, MI 48071. 810-772-4484 (24-hour: leave name and number for parent contact return call). A local support group for families in the metroplitan Detroit area created to help serve the needs of families experiencing miscarriage, stillbirth, and newborn death. They hold monthly meetings, has lending library, quarterly newsletter and individual telephone support.

Glory Babies of the Children are a Gift Foundation offers personal stories, articles, free newsletters, prayers, poems, memorials, resources & links. Support group for parents meets every third Tuesday of each month at 6:30 at 1305 Baxter Street, Tyler, TX 75702. For more information contact:Jennifer at 903-939-1548 or email: GloryBabies@ChildrenAreAGift.com . Address to write for more information: Children Are A Gift Foundation, 4828 South Broadway, PMB #122, Tyler, TX 75703. Web Site: http://www.ChildrenAreAGift.com

GRACE Support Groups meet thethe 2nd and 4th Tuesdays of the month from 6:30-8:30 P.M. in Room 227 Conference Room, Lord of Life Lutheran Church, 18500 County Road 101, Maple Grove, MN 55311. GRACE Support Groups are all facilitated by and made available for individuals and couples who have journeyed through infant and pregnancy loss, infertility and adoption. Groups meet a minimum of 2 times a month for 2 hours at each meeting. The first meeting of the month is set up to be a time of open discussion and sharing of individual stories. An activity is planned for the second meetings of the month, with the goal being a time to join together in doing positive things to process through grief. These activities are typically determined at the first meeting of the month and groups will pick what kind of things they want to do together. Some of these meeting may be done at a different location than where the group meets for the first meeting of the month. Light refreshments provided Please see our website for additional information. For more information contact  Candy McVicar, 763-497-0709, email: mcvicar@mninter.net . Visit their website at: http://www.missingGRACE.org

Grief Recovery Help Line, (800) 445-4808. A public service of the Grief Recovery Institute Foundation, the hotline is free of chargenad provides personal help with loss and grief of all kinds.

HAND of the Peninsula, P.O. Box 3693, Redwood City, CA 94064 (650) 367-6993. HAND (Helping After Neonatal Death) offers a support group, 24 hour telephone crisis support, funeral planning and financial assistance to families in need. They also provide a bilingual resource library (Spanish and English). They also publish a quarterly newsletter and maintain an online resource for support after a neonatal loss.

Hannah's Prayer, PO Box 5016, Auburn, CA 95604-5016, (775) 852-9202; email hannahs@hannah.org. A organization with Christian emphasis, concentrating on infertility or the loss of a child at any time from conception through early infancy. Have network of local care/support chapters throughout the US, a newsletter, and penpal connections.

Haven of Hope and Healing, Inc., PO Box 747, Graham NC 27253, (336-227-8306. A nonprofit, organization committed to providing mental, emotional, spiritual, and educational support to those who have experienced the loss of a baby through miscarriage, stillbirth or infant death. We are a nondenominational organization that helps parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth.

Helping Other Parents In Normal Grieving (HOPING), E.W. Sparrow Hospital, PO Box 30480, 1215 East Michigan Ave., Lansing, MI 48909-7980, (517) 483-3873. Information and resources to bereaved parents includes individual parent-to-parent support, a photograph and keepsake bag program, a library, and meetings for the community at large.

M.E.N.D. (Mommies Enduring Neonatal Death), Po Box 1007, Coppell, TX 75019, (888) 695-MEND; email rebekah@mend.org. Holds support group meetings with a Christian emphasis in the Dallas/Ft. Worth metroplex. Monthly meetings for those families whose baby has died, a monthly meeting for subsequent pregnancy after a loss, and four times a year there is a "Daddies group" meeting.

M.I.S.S. (Mothers In Support and Sympathy), P.O. Box 5333, Peoria, AZ 85385-5333. Call Joanne Cacciatore, phone or fax (623) 979-1000, or call Julie White, (602) 584-0805 (voice). A regional (Arizona) grass roots organization dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations offered.

National Office of Post Abortion Reconciliation and Healing, PO Box 07477, Milwaukee, WI 53207-0477, (414) 483-4141 and provides (800) 593-2273 referral line for those seeking assistance in reconciling an abortion experience. Religious-affiliated organization providing support and resources.

National SIDS & Infant Death Program Support Center, 1314 Bedford Avenue, Suite 205-B, Balitmore MD 21208, (800) 638-7437, (410) 415-6628, Fax (410) 415-5093. This organization is attempting to create a nationwide network for private and public organizations, committed to ameliorating SIDS and reducing infant mortality. At the core is the desire to provide an umbrella for SIDS and other infant death efforts across the country to encourage networking, sharing of resources and experience.

National SIDS/Infant Death Resource Center, 8280 Greensboro Dr., Ste 300, Mclean VA 22182, (866) 866-7437; (703) 821-8955, (703) 821-2098 (Fax), sids@circlesolutions.com (E-mail), http://www.circlesolutions.com (Web site). Sponsored by the U.S. Government Department of Health and Human Services, it offers a variety of free publications on SIDS as well as a resource list and abstracts of periodicals and books published on the topic. Keeps a database of all English-language publications on SIDS and where to find them. Email: sids@circsol.com

Neo-Fight, PO Box 17715, Indianapolis, IN 46217. 317-446-3013 (answered 24/7). 24 hour call line. Listener support for families experiencing high-risk pregnancy, premature or critically ill newborn, fetal or infant death. Hold monthly meetings in Carmel area and put out quarterly newsletter. Website: http://www.neofight.org . Email contact for info: Richard@neofight.org

Open ARMs (Abortion Related Ministries) Patti Goodien-Slauson, PO Box 9292, Colorado Springs, CO 80932, (719) 573-5790. Affiliated groups national Christian post-abortion support group for those suffering from an abortion¹s emotional aftermath.

PATH (Parents Available To Help), 42 Brookwood Drive, Branford, CT 06405.

Pen Parents, Inc., PO Box 8738, Reno, NV 89507-8738, (702) 826-7332, FAX (702) 829-0866; email PenParents@aol.com. A correspondence network for parents who have suffered the tragedy of pregnancy loss or the death of a child. A good resource for professionals, too.

Pen Parents of Canada, Po Box 52548, RPO Coquitlam Centre, Coquitlam, BC, Canada, V3B 7J4. A correspondence network for parents who have suffered the tragedy of pregnancy loss or the death of a child.

Perinatal Berievement Services Of Ontario, 6060 Highway 7, Suite 205, Markham, Ontario, L3P 3A9; (905) 472-1807; Toll Free: 1-888-301-PBSO (7276); Fax: (905) 472-4054; E-Mail: pbsocares@pbso.ca . PBSO provides a variety of unique support services that have been tailored specifically to meet the special needs of perinatally bereaved families. The organization has also grown to include developing and implementing educational training seminars for health care professionals, caregivers, clergy and funeral directors on how to best support these families.

Perinatal Loss Project, 2116 NE 18th Avenue, Portland, OR 97212-2621, (503) 284-7426. Booklets, cards and videos available for purchase.

Perinatal/Pregnancy Loss Group, Oakville Family Therapy Centre, 345 Lakeshore Road, East Suite 206, Oakville, Ontario Canada L6J-1J5.

Pineapple Press, PO Box 312, St. Johns, MI 48879, (517) 224-1881. Several books available and the publish a newsletter for parents who have interrupted their pregnancies.

Pregnancy and Infant Loss Center, 1421 E. Wayzata Blvd., Suite #30, Wayzata, MN 55391, (612) 473-9372, (612) 473-8978. A national non-profit that offers local and national support group information, a parent-to-parent peer support program, and professional training on miscarriage, stillbirth and infant death. They offer membership and a quarterly newsletter for $20 per year.

Pregnancy Loss Support Program, National Council of Jewish Women, NY Section, 9 East 69th Street, New York, NY 10021, For more information about receiving counseling or joining a support group, please call (212) 687-5030 ext. 40. A non-sectarian service offering peer telephone counseling and support groups to men and women after miscarriage, stillbirth or newborn death. Support for parents during subsequent pregnancies. Spanish available.

Rainbow Connection, 477 Hannah Branch Rd., Burnsville, NC 28714, (704) 675-5909, FAX (704) 675-9687. A resource organization providing networking, training and resources related to loss and grief, death and dying, comfort and hope.

Raindrops, Hospice of Ponca City, 1904 North Union, Suite 103, Ponca City, OK 74601, (580) 762-9102, Fax: (580) 762-9111. Support services for individuals as well as organizations, dedicated to aiding bereaved parents. They house a sewing center where volunteers make clothing (gowns, blankets, bonnets) and other mementos (stillborn and miscarriage pouches). Email address: hospc93@pcok.com.

RTS Bereavement Services, Gunderson Lutheran Medical Center, 1910 South Ave., LaCrosse, WI 54601, 1-800-362-9567, ext. 4747. Email: berservs@lhl.gundluth.org. Hospital-based organization offering a support group, literature, and professional education after miscarriage, stillbirth, and neonatal death.

SHARE (National Office), St. Joseph's Health Center, 300 First Capitol Drive, St. Charles, MO 63301-2893, (800) 821-6819, (314) 947-6164, FAX (314) 947-7486. Offers support to families who have had a miscarriage, stillbirth or infant death. Provides a newsletter, network of worldwide support groups, literature and referrals.

Support After Fetal Diagnosis of Abnormality (SAFDA), Royal Hospital for Women, Locked Bag 2000, Randwick, New South Wales Australia 2031. Contact Sheila Sim (02) 9382-6670, Bronwyn Butler (02) 9926-7324 or SANDS (02) 9906-7004.

U.N.I.T.E., c/o Jeanes Hospital, 7600 Central Avenue, Philadelphia, PA 19111, (215) 728-3777. Provides grief support following the death of a baby, including miscarriage, ectopic pregnancy, stillbirth, and infant death; maintains local chapters (predominantly in PA and NJ); offers educational programs to professionals and public; offers training workshops for grief counselors and group facilitators.

Wintergreen Press, 3630 Eileen St., Maple Plain, MN 55359, (952) 476-1303. Sells books, booklets, audio-visual materials and consultant/trainer on the subject of miscarriage and infant loss.

Wisconsin Stillbirth Service Program, University of Wisconsin-Madison, Clinical Genetics Center, 1500 Highland Avenue, Madison, WI 53705-2280, (608) 262-9722. Serves individuals who have experienced the tragedy of stillbirth, and professionals who care for them.