Webmaster's note: If you find a bad link, or a new link that you think should be considered, please e-mail me with the pertinent information. That way you will help us to keep other visitors to this page with the most up to date information.

PREEMIE SITES

• American Assocaition for Premature Infants. Learn about their mission, and then click on the "Learning Center" to be connected to their resources including: bookstore, links page, NICU Glossary, page on Apgar Scoring , weight conversion chart and a 2002 Immunization Chart.
• Austprem Inc. Through Austprem, families who have experienced the complex challenges of parenting a premature infant reach out to other families facing this journey, and offer friendship, information and support. Regular online chat schedule (note that these times are Autralian times so make sure to convert if you are not Australia!), lots of information and resources.
• Babylinq is your "linq" to great preemie clothes, baby products, maternity underwear, tips, and websites.
• Breastfeeding Premature Infants. This page lists several wonderful articles that are reprints from "Beginnings" magazine, and sponsored by the LaLache League.
• Carrying To Term Pages is an online how-to guide for carrying a pregnancy to term after diagnosis of a condition fatal to the baby. The site includes birth plans for terminally ill babies, memorial ideas, funeral planning, and emotional support.
• Closer Look at Preemies. Wow, check it out... Learning about preemies | Preemies in the News | Links | Books | After the NICU | Foundations for Preemies | Newborn and Preemie Patterns | Clothing for preemies | Tips on feeding and caring for preemie | Outcome for preemies | Statistics for preemies | Documentary on Preemies
• Connection Between Gum Disease and Pregnancy Problems. Very short article noting the statistical connection between gum disease and increased risk of premature birth.
• Developmental Difficulties--When Premature Infants Fall Behind. An article by By Gwen Morrison on the TwinsToday.com website.
• Empowering Parents of Premature Babies page allows you to view all of the conference papers from the first Alexis Foundation/Premie-L conference in 1998.
• Fetal Monitoring. There are many different opinions about Fetal Monitoring. This page will attempt to put some of these thoughts on line for people to be able to make informed decisions about their care, including their choice of monitoring during labor and birth.
• For a Special Baby Preemie Clothes. A Yahoo store site with lots of wonderful preemie products and clothes. (Heads up: I couldn't make the site work in Netscape, so you might want to make sure you try opening it in Explorer first...)
• For Parents of Preemies: Answers to commonly asked questions, is an excellent site with over 60 categories put together by eight medical professionals.
• Growing Strong tells the story of how the impact of premature birth and disability shaped the author's faith and life. The full book is also available in e-book form (details on the webpage).
• Itty Bitty Bundles. Itty Bitty Bundles provides a selection of baby clothing for preemie babies 4-7 lbs. and extra tiny NICU micro preemies 1-3 lbs. Premature baby clothes at affordable prices.
• Jeff's Life is put together by the father of a one-year-old former preemie. The site includes many essays about his son, Alex, and what experiences they have gone through. Wonderful resource.
• Learning Problems and Developmental Disorders of Former Preemies. Includes Developmental Delays and Disorders; Early Intervention for Children Ages 0 through 5; Retinopathy of Prematurity; and Support for Parents.
• Marianne's page on NEC provides information for parents of premature babies who have encountered NEC (necrotizing enterocolitis)
• Mary Searcy's Preemie Resources, a wide range of resources, books, and internet sites specifically geared to the issue of preemies.
• MedlinePlus: Premature Babies. A list of articles, online news articles and websites related to Premature Babies.
• Meriter Hospital Perinatal Program - Primarily for parents of Preemies, including answers to commonly asked questions.
• NiCu Network™ was created by parents to support parents of premature babies. Here you can connect with other preemie parents, share your experiences, and utilize the resources provided. This website helps you to remember that while you may not know many people who have been in your shoes, you are certainly not alone.
• NICU-Web offers information on common Diagnoses, procedures and interventions, neonatal resources, medical resources, and reference materials.
• Nurture Place. Preemie clothes and newborn baby clothes at outlet prices. Specializing in preemie baby clothing and for the 1-3lb. micro-preemie, 3-7 lb. preemie, and newborn babies up to 9 months.
• Nurturing Your Premature Baby is the site for information on a "Suite University 101" course in 8 lessons.
• Parent's Place Discussion Forum is an open forum for parents of babies born prematurely.
• Parent Soup offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine. A subsite of iVillage.
• Peeny Weeny Baby. Premature baby clothing and accessories. This company is located in the United Kingdom, so I assume shipping to the US and other than EU countries would be kind of expensive... but it is a good stop for our EU preemie parents.
• Preemie-L Discussion Forum, is a very active site where you can communicate about all topics related to preemies. In a recent 4-day period, we noted almost 200 entries! Also check out the Preemie-L Homepage.
• Preemie Magainzine. Although it is the site to plug Preemie Magazine, the info you can get their is wonderful! Site includes info on finding a support group, listing of resources, online forums and online live chat. Also includes a Birthday Club, a Prayer Page, and an Angel Page, as well as archive of the magazine articles.
• Preemie Clothes & Accessories from Zach's 5th Avenue, featuring affordable quality clothing and accessories for the premature and low birth weight baby
• Preemie Group. A support group for parents of preemies. We offer many resources from the NICU through school age. The members are supportive,warm and friendly who have a wealth of knowledge when it comes to preemie related issues.
• Preemie Miracles. A Yahoo list group for parents of premature babies and also moms-to-be who may be at risk for delivering early and may have questions for mother's of premature infants and children. This list offers support to parents of children born prematurely and the friendship of people with things in common
• Preemie Moms. A Yahoo support group promoting support and encouragement for mothers (bio and adopted) of premature children. The preemies can be of any age, from 0 to adult.
• Preemie News. An online magazine for parents of preterm babies.
• Preemie Patterns. What a great site to link up with crocheted, knit and sewing patterns for preemie hats, booties and mitts and preemie sweaters.
• Preemies R Us. Clothing site.
• PrematureBaby.org This is a site designed around a group of moms, dads, grandparents of premature babies/children.
  They gather together and offer support, friendship and a postive outlook on parenting preemies young and old. They are proud of their children and the obstacles and milestones they overcome. They also have a forum for interested members.
• Premature Babies Guide at Keep Kids Healthy. This page took a long time to download so if you are interested be patient. Article talks about risk factors, general info and some additional links. Good info.
• Premature Baby - Premature Child is a site of support for parents of children born prematurely. Includes mailing lists, resources, etc.
• Premature-Infant.com Articles about preemie issues, NICU do's and don'ts, resources for preemie parents and dozens of wonderful "imagines" from both parents and nurses.
• Premature Infants: A Later Look. A series of several articles on premature birth on the AboutOurKids.org website can be accessed through this page.
• Prematurity. A great overview article from the "Disney Encyclopedia of Chidlren's Health."
• Spenser's Hope was formed to help families who are experiencing preterm labor and premature birth. Aim is to provide education and support to families today and to fund research to help determine the cause of preterm labor tomorrow. Includes personal story, preterm birth resources, preterm labor resources.
• Sweet Child of Mine. Click on "preemie baby clothing" for a great selection.
• T-Bone's Survival Tips for New Preemie Parents includes suggestions to help parents, family and friends cope with the birth of a premature baby.
• The Babies Planet Preemie site.
• The Early Edition: An online newsletter for parents of preemie, including "a collection of wisdom and discussions from the on-line support group 'Preemie-L'.
• The Premature Infant. A online article, short but interesting. Page also includes links.
• The Preemie Page. A list of information of interest to those who have had preemies from the website "Motherstuff."
• The Preemie Place. Great site with articles of interest to preemie parents, lots of resources, and a forum to participate in.
• The Preemie Ring Homepage, a group of hundreds of preemie sites that are all linked via a "ring." No commercial sites here, and are usually individuals who have put their story on the web. You can start the ring here or enter your own site for consideration.
• The Preemie Store Another company that specializes in clothing for premature infants. Many of their products are specifically designed for use in the Neonatal Intensive Care Unit.
• Tommy's CyberNursery-A Preemie Web Site! A great site of interest to parents of premature infants. Includes an extensive link system that will surely have many things of interest, and may very well be the best site on preemies for you to have as a permanent bookmark!
• Your Preemie. Website for the new magazine "Your Preemie".
• Your Special Newborn: A Guide for Parents of Preemies, includes a wealth of information on getting to know your preemie and the NICU, and on growth and development. Includes extensive preemie links.

If you find a bad link, or one that you think I should consider to be added, please don't hesitate to e-mail me with the pertinent information.

PERSONAL PREEMIE SITES

• Imagine--Stories of Preemies, a collection of personal stories that have been posted from the Preemie-L listserve. Heart wrenching, but validating for other parents of preemies.

• Abracadabra Maternity offers a full selection of maternity clothes that are available for on-line purchase.
• Baby Catalog is a web site devoted to the on-line purchase of furniture, bedding, books, toys, and nursery supplies.
• Babycenter.com
• The Baby Depot Also known as Burlington Coat Factory, The Baby Depot is an on-line shopping service.
• Baby & You (JCPenney) offers maternity clothes, layette and baby clothing, furniture, and some nursery accessories. All available for on-line purchase.
• BringingUpBaby.com has a mission to "Provide Quick and Easy Access to Preventive Healthcare Information on the Internet for New and Expecting Parents". Includes safety information, class info, prenatal and newborn sections, as well as many other options.
• The Company Store Clothing and linens.
• Cosco Consumer Relations Catalog available for purchasing car seats, strollers, cribs, high chairs, etc. Web page includes detailed information and photos of the many products offered, as well as a "Where To Shop" guide.
• Evenflo Consumer Affairs Feeding products and baby accessories. While there is not a catalog available, there are brochures available that describe their products. The web page offers full product information and photos.
• Fisher Price "Toy Fare" catalog available for $5. Catalog includes all Fisher Price toys, clothing, baby monitors, and other products.
• Gerber Baby Products There is not a catalog available, but there are brochures and informational packets which are available. This phone number is staffed 24 hours/day. There is also a mailing list to receive coupon packets and information about their baby foods, infant formula, and feeding products. The web page is comprehensive and allows consumers an opportunity to ask questions of the Gerber Product Specialists.
• The Gymboree Corporation On-line store for purchasing baby clothes. Also, information about the Gymboree infant classes.
• High Risk Pregnancy. What exactly does it mean when you are told you have a "high risk" pregnancy. Understandable article written by an MD.
• Iowa Women's Health Center has a wonderfully extensive site that includes information on bedrest, emotions during pregnancy, pregnancy problems and risks, and many other important information pages.
• Johnson & Johnson Johnson & Johnson does not have a catalog, nor do they accept direct customer orders. However, they have product information packets and a mailing list.
• La Leche League International is an organization providing women with breastfeeding information and support. Call to find out where your local chapter is located. LaLeche League also offers support groups in major cities throughout the country. Offers a helpful web page. Women can submit questions via e-mail for answer by a qualified lactation consultant. Information is also available for women breastfeeding premature infants or multiples.
• Le Petite Baby This company is the world's largest supplier of clothing for premature (weighing less than seven pounds) infants. Their on-line store allows for purchase of clothing.
• Mary Searcy's Pre-term Labor Resources, offers reviews of materials on bedrest and on problem pregnancies.
• Medela Rental Services Breast-pump rentals. Web-page offers information and on-line lactation consultants to answer questions.
• Mothers of Supertwins (MOST) is an international non-profit support network of families with triplets and more. MOST provides information, resources, empathy and good humor during pregnancy, infancy, toddlerhood and school age. Use our online form to join MOST and receive their Quarterly Magazine.
• Mother's Nature On-line shopping available. This company offers cloth diapers, nursing clothes, baby slings and carriers, and more.
• National Organization of Mothers of Twins Clubs, Inc. is a great web site offering a wealth of information about parenting twins. They oversee Twins Clubs all over the country, and the web-site will help you locate a club near you.
• The Online Preemie Store Preemie products, resources, and a discussion forum.
• Parent Soup offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine.
• The Preemie Store Another company that specializes in clothing for premature infants. Many of their products are specifically designed for use in the Neonatal Intensive Care Unit.
• Pregnancy Today is a new, extensive online magazine devoted to pregnancy and resources. A great place to browse as you are on bedrest!
• Pregnancy Bed Rest: Information and Support for Parents and Caregivers has stories and information for both families and caregivers. Click on "families" or "caregivers" for extensive resources applicable to each group.
• Sidelines Canada. Canada's national non-profit network supporting families experiencing complicated pregnancies. Includes information, articles, links and feedback. Currently a French Canadian version under construction.
• Sidelines National Support Network has many local chapters throughout the United States. The staff of Sidelines match women on bedrest with a woman who has experienced a similar bedrest. Also available is a magazine by and for women with high-risk pregnancies.
• Spencer's Spencer's is a company well-known for layette and infant clothing. They have a well-organized web page, complete with on-line shopping services. They also have a catalog you can request.
• Triplet Connection is a nonprofit network of caring and sharing for multiple-birth families. They provide information to families expecting triplets, quadruplets or more as well as encouragement, resources and networking opportunities for families who are parents of larger multiples. Includes a chat room, topics of interest, links, products, and information on their convention, among other things.
• United Way of America offers helpful programs for low income families or single parents who need assistance while on bedrest. Consult your local telephone directory for a local listing, or call their number and inquire about services and funded agencies that are available.
• Wal-Mart Wal-Mart offers a complete on-line store. Their entire store is available, just click on the "Infant and Baby" icon to move to that section.

If you find a bad link, or one that you think I should consider to be added, please don't hesitate to e-mail me with the pertinent information.

RELATED TOPICS

• A Heartbreaking Choice, for parents who have interrupted a pregnancy after prenatal diagnosis revealed serious fetal anomalies. It includes a listserv mailing list option.
• Abortion - Post Abortion Stress Syndrome Support is a non judgmental place for women who have had abortions to find support and recovery for their loss. This is a place for healing and strives to be "politically neutral", and so it does not allow the political issues of abortion to enter its chat rooms.
• About.com's Guide to Infertility is an extensive site focusing on all issues related to infertility, including Pregnancy Loss and A Pregnancy After Infertility or Loss.
• Aicardi Syndrome web page. Web site for the Aicardi Syndrome Foundation with inforamtion, stories, and links.
• Always Loved, Never Forgotten. Newsletter/Support group for anyone who has ever lost a child of any age.
• American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), includes news, information on meetings, library/review lists, information on research, and will soon be premiering their discussion group.
• American Psychiatric Association site is primarily for its professional members rather than for the public.
• American Psychological Association web site includes a large section for the public dealing with many topics of interest, including depression.
• Anencephaly Support Foundation provides information, personal stories, and medical articles regarding the neural tube defect of anencephaly.
• APERT Syndrome. Information site.
• Ask NOAH About: Pregnancy and Childbirth Problems & Risks. If you can't find it on this list you have a rare question indeed! I counted over 300 categories/links on their list!
• At Health, Inc. includes excellent brief overviews of such mental health issues as bereavement, depression, stress and anxiety. Also includes names of mental health professionals around the United States who deal with such issues.
• BabySteps is a a resource canter for parents and children who have lost a child or sibling of any age, and also provide a place of comfort. Sometimes I have trouble loading the front page, but once inside you will find a Sharing Room (one for kids, one for adults, and one for professionals), a brand new remembrance section (for children of any age), and a wonderful section with short reviews of over 65 books related to grief and loss of a child. (Note: if all else fails and you can't get through the main door, try http://www.babysteps.com/rrmainframe.html, which is the resource page.)
• Birth Defects Research for Children. Provide comprehensive fact sheets about birth defects, as well as other information. Also provide parent matching opportunities and information resources, including books and links or participate in the National Birth Defect Registry.
• Bruderhof Grief Companion. Everyone grieves differently. But no one needs to carry grief alone. Whatever loss you are grieving, here you can share your loss with others, and find material that other grieving people have found helpful and comforting. Grieving takes time. Take time to grieve.
• Bryan's Kidney Page A page about pre-birth kidney failure and options other than termination. This page is a personal story but it is so much more with an incredible amount of important links for all kinds of special needs.
• Cerebral Palsy. A wonderful overview of cerebral palsy in an article titled "When Your Child Has Cerebral Palsy" on the KidsHealth.org website.
• CHARGE association (or syndrome) is an acronym referring to children with a specific pattern of birth defects. The acronym is: "C" for coloboma, "H" for heart defects, "A" for atresia choanae, "R" for retardation of growth and development, "G" for genitourinary problems, and "E" for ear abnormalities. Information site.
• Cherubs is the official site of The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support. Extensive site. Lots of information. Fun graphics. Bulletin boards and program information. Information also available in Spanish, French, Portugues, Italian, and German.
• Children's Disability List of Lists is a current, annotated list of mailing lists for families of children with disabilities and special needs...and there are hundreds covered!
• Cleft Palate Foundation. American Cleft Palate-Craniofacial Association/Cleft Palate Foundation site. Information sides for both parents and for caregivers/health professionals. Also a site in Spanish.
• Complications and Medical Problems in Pregnancy. Over 50 different categories to choose from all the way from "Caffeine can cause miscarriage" to "Fibroid tumours" to "I want a baby but I'm epileptic". Check it out...
• Complications of Pregnancy. Quite extensive pregnancy site of Robin Elise Weiss, Childbirth Educator (and who has had seven pregnancy losses) which includes this section on pregnancy complications.
• Crouzon Support Network. An organization for individuals and families who are dealing with Crouzon Syndrome and other cariofacial anomalies.
• Cystic Fibrosis Foundation, Offers extensive information and referrals to local chapters, support groups, medical information and a newsletter.
• Depression After Delivery, Inc. is a national nonprofit organization that provides support for women with postpartum depression.
• Dougy Center, The National Center for Grieving Children and Families, provides support and training locally (Portland OR), nationally and internationally to individuals and organizations seeking to assist children and teens in grief.
• Down's Syndrome: For Parents Includes questions and answers, reading list, stories, a forum, web rings and list of resources.
• Ectopic Pregnancy Trust. Find out about the symptoms of an ectopic pregnancy and how they happen and read our answers to your most frequently asked questions. Read about chlamydia trachomatis, our diagnosis guidelines and our recommended books and other websites.
• Emergency Child Birth. (Steps to Take In an Emergency Child Birth Situation). Here are some of the basics in a step by step format on what to do in various emergency birth situations... when not to transport a mother; what do do if the baby is delivering; what to do with the placenta; should you cut the cord?. Also talks about what to do in post and pre delivery emergencies such as multiple birth, umbilical cord accidents; wedged shoulders, breech birth; and excessive bleeding.
• Empty Arms UK. This site is for women dealing with Endometriosis and Infertility. It is designed as a means of support, encouragement. Includes information, forums, guestbook, articles, stories, links and web rings.
• Esophageal Atresia Index. The purpose of the web site is to provide information to the families of babies suffering from
  Esophageal Atresia and Tracheoesophageal Fistula, as well as to health care providers who would like to review their treatment.
• Family Village is a "global community of disability-related resources."
• Fertile Thoughts is a site focusing on infertility, surrogacy, pregnancy and adoption.
• Fernside is a beautiful site for grieving children and their families: "we know that the grieving child has the capacity to rebuild, so we gently encourage sharing of stories, feelings and memories with trusted friends, honoring each one's search for a new beginning." Includes a kids area, grownup area, and resources.
• Fetal Alcohol Syndrome. Some straight talk facts about Fetal Alcohol Syndrome--dispelling the myths.
• fetal-surgery.com Information regarding fetal surgery for spina bifida.
• Fetal Treatment Center at UCSF Children's Hospital is a world leader in diagnosing and treating birth defects, using advanced therapies including fetal surgery. They have an extensive website including information on prenatal diagnosis.
• Genetic Alliance includes a Directory of National Genetic Voluntary Organizations (list of over 300 support groups).
• God's Little Ones. This artist creates incredibly lifelike dolls for people to remember their babies. The dolls range in gestational age from 6 weeks to full-term. The artist is a mother of a miscarried baby born at 8 weeks gestation, and preemie twins born 8 weeks early. The portrait dolls on this site were all made at the request of the parents of these real children. A couple warnings: first the site may be very slow to download as it is full of pictures and graphics. Secondly, this site is decidedly pro-life. And, thirdly, the images are very real and life-like (made from resin) and may be very intense for persons who have lost their infants through miscarriage or stillbirth.
  
• Good Grief Rituals gives support for parents with poor prenatal diagnosis prior to birth and after-support. Poetry, personal stories, remembrances, support groups are just a few areas in this site.
• Grief Net. A "general" grief site which includes: library; bulletin board; resource center; links to emergency services and a shopping mall.
• Grief Resources. A site which offers the general grief resources of several companies. The video / audio offerings look especially promising, and there are cards as well as several book/booklets on specific grief topics.
• Group B Strep Association
• HER Foundation is a non-profit organization dedicated to hyperemesis gravidarum (HG) research and education and to those suffering from HG or those who have survived it.
• HGSurvivor.org is a website that is dedicated to women and families who are suffering, or have survived, Hyperemesis Gravidarum (HG). HG is a severe form of dibilitating morning sickness that occurs in approximately 2% of all pregnacies.
• High Risk Situations and Complications in Pregnancy. A sub-section of the OnLineBirthCenter, there are links here to many kinds of high risk situations including: Screening & Testing; Violence & Sexual Abuse; HIV and AIDS; Group B Strep; Preeclampsia; Drugs, Alcohol, and Pregnancy; C-Section and VBAC, etc.
• Hoping Skills Company. Lots of sympathy gifts to help children and adults cope with grief and loss.
• IVF.com Endometriosis Homepage. A wealth of information on infertily, in vitro fertilization, endometriosis. Includes chatline, guestbook, FAQs, bookstore.
• INCIID The International Council on Infertility Information Dissemination. If you are seeking information on infertility, this is a great place to start since it is the largest (they claim over 4 million hits per month). Includes fact sheets, several bulletin boards, links, and a directory of physicians, therapists and attorneys. Includes experts who are online at specified times to answer consumer inquiries.
• Infertility Blues. A Mind/Body Approach to Help Women Cope with Infertility and Enhance Fertility.
• Infertility Home on the Net is a couple's guide to overcoming infertility.
• Internet Resources for Special Children. A "links" site which connects you via internet to sites from autistic spectrum disorders to rare disorders such as prader-willi syndrome, schizencephaly, and everything inbetween: blind & visually impaired; brain injuries; congnitive disorders; communication disorders; deaf & hearing impaired; diseases such as diabetes and conditions such as cleft lip; learning disabilities such as ADD and dyslexia; musculoskeletal disorders such as dwarfism; to neurological disorders such as cerebral palsy and epilepsy; many others.
• Journey of the Hearts, a Healing Place in Cyberspace is an all-encompassing site focused on general grief. It's sections on loss, coping, and on how to help someone else who is grieving are well worth a visit to the site. It also has a very extensive resource section on medical information links on a huge range of topics.
• Julia's Journey with Spina Bifida. Includes personal stories, information, and links on Spina Bifida and Hydrocephalus.
• Labor of Love Pregnancy and Parenting Search Engine is a search engine devoted specifically to pregnancy-related issues and includes links for High Risk, Loss Support and Miscarriage among many others. Includes large book lists on topics of interest and information articles, i.e. ectopic pregnancy.
• The Langer-Giedion Syndrome Association supports families affected by the Trichorhinophalangeal Syndromes (I, II, & III) and works with medical specialists to promote research. This website includes a discussion board and article abstracts in addition to links.
• Lifelike Sculptures. Jennifer makes original, one of a kind baby sculptures. She take custom orders for sculptures of babies based on photos and centered on a celebration/honoring of babies before and after birth. She began sculpting after losing quintuplets, born at 23 weeks gestation, so her heart is definitely in what she does. The sculptures are not inexpensive, but seems more than reasonable for the incredible works of art that she produces.
• Living With Heart is for people who are working to put their lives back together after the chaos of trauma; who want to move past the grief trauma causes and rebuild a life of meaning and joy.  This is a place for people to come together to find hope and encouragement, to share knowledge and wisdom, and to learn.
• Living with Trisomy 13. This site focuses on bringing the families of beautiful Trisomy 13 ( Patau Syndrome) children together. Sharing their stories of living and growing in love in the challenges of raising a Trisomy 13 child. It is our wish that the photos will bring great HOPE, Support and inspire those visiting the site.
• Loss On-Line Support is an ezine published monthly by Koto Press, who also publishes several loss books. The have the loss ezine issues available for you to peruse. And, if you click on the "Mrs. Duck Project" you will be treated to the story in a Flash version and in an html version as well as learn how to become a participant in the Mrs. Duck Project.
• Male Infertility MDs. A index site to help you find a male infertility specialist closest to you. Also includes some basic info on maile infertility.
• March of Dimes Birth Defects Foundation, Offers information, referrals and education on many prenatal, pregnancy and child related issues to improve the health of babies by preventing birth defects and infant mortality. Local chapters throughout the country.
• Monoamniotic Monochorionic Support Site. The web site for expectant and experienced parents of monoamniotic twins, formed by experienced and expectant parents reaching out to each other to help support each other through the difficult times. Includes great explation of monoamniotic twins, as well as lots of links to important medical as well as lots of support sites.
• Multiple Birth Prenatal Education & Bereavement Support. This Web Site offers information regarding multiple births. It includes pregnancy and post-natal information and, from the point of view of new parents, it attempts to address some of your questions and concerns. Although a joyous time, there are sometimes risks in multiple births. Hence this Web Site also offers bereavement support for parents who have lost one, more or all of their multiple birth children during pregnancy or in infancy.
• Multiple Birth Resources Updates, information on video education and on MBR classes.
• MUMS National Parent-to-Parent Network is a non-profit support organization for families of children with rare disorders or medical conditions and also for service providers who assist these families. Parents are matched or sent a list of other parents whose children have the same or similar diagnosis ($5.00). MUMS' database has over 18,000 families registered from 54 countries and represents over 3000 rare or not so rare disorders or medical conditions.
• National Adoption Center A non-profit organization whose mission is to expand adoption opportunities throughout the United States for children with special needs and those from minority cultures.
• National Adoption Information Clearinghouse, a federally-funded one-stop resources for information on all aspects of adoption.
• National Information Center for Children and Youth With Disabilities is an information clearinghouse that provides information on disabilities and disability-related issues. Children and youth with disabilities are a special focus.
• National Institute for Trauma and Loss in Children (TLC) Parents Trauma Resource Center. TLC's Parents Trauma Resource Center is an excellent site for parents and caregivers to easily find detailed information about grief and trauma as well as ways to help themselves and their children.
• OB Focus. Well here is a site that every hospital should consider building. Devoted to prenatal diagnosis, management of medical complications of pregnancy and management of complicated pregnancy they have built a most incredible site of information and helpful tools to pregnant parents. Includes everything from naming and birthstones all the way to explanations of blighted ovum, placenta accreta, RH disease, etc., etc. Wonderful work San Gabriel Valley Perinatal!!
• Parent Soup offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine. Includes sites for abortion loss, miscarriage, and stillbirth among its huge offerings.
• Paternity Angel. Someone HAS done an entire (and complete) website for MEN and pregnancy! If your significant other is pregnant you have got to bookmark this page!
• Polycystic Ovarian Syndrome Association. The website for the POSA, a a national nonprofit organization operated by women with Polycystic Ovary Syndrome. Includes information on the syndrome, a quiz help narrow in on symptoms, email lists/chats/discussion boards, and info on regional and national coferences regarding POS.
• Potter's Syndrome. A website devoted to Potter's Syndrome (renal agenesis), one of several serious or fatal kidney abnormalities. In Potter's (or Potter) syndrome the baby's kidneys do not develop in the first few weeks of life in the womb. They have an online support fourm is http://forums.delphiforums.com/potterssyndrome/start
• PPD Support Group. Includes information, stories, forum, chat group, support info, contact information, and online support for those suffering from postpartum mood disorders.
• Preeclampsia Foundation. A non profit organization dedicated to funding research, raising public awareness, and providing support and education for those whose lives have been touched by preeclampsia and other hypertensive disorders of pregnancy.
• Pre-eclampsia site. Information about Pre-eclampsia, Eclampsia and HELLP Syndrome. This is a very personal site, with many true stories, pregnancy diaries, special babies, a very supportive email discussion group and much more including memorials for losses due to pre-eclampsia, eclampsia or HELLP Syndrome as well as the stories of those babies who have beaten these conditions. Site based in the United Kingdom
• Pregnancy and Asthma. If you are pregnant and have asthma, this is an important site. Includes why it is important to control asthma during pregnancy and asthma treatments during pregnancy. Also has a FAQ.
• The Pregnancy Institute, Inc., is a non-profit organization created to study normal pregnancies. It is designed to promote the likelihood of healthier pregnancies resulting in well monitored, full-term live births. Has strong emphasis on Umbilical Cord accidents and currently has at least 5 Case Studies going on.
• PregnancyMD is a site which offers both free advice as well as paid fee services for those who are struggling with issues of infertility. Includes fact sheets, support groups, links page, a list of worldwide fertility centers, and free newsletter.
• Problems During Pregnancy. WOW--what a wonderful resource of the Medybiz.com website! Talks about the most common problems such as itching and backaches, all the way to such special issues as ectopic pregnancy, gestational diabetes, to placenta previa.
• Rachel's Vineyard. Site is for any person who struggles with emotional and spiritual pain of past abortion(s). Offers information, training and publications, and sponsors what we feel are weekend workshops around the United States (we counted 40 state locations) and 7 other countries.
• Ramah is a nonprofit site ministering to those suffering from Post-Abortion Syndrome (PAS). This site is not position neutral (it is pro-life), but it is a valuable site for those who who are looking for support and resources in an effort to restore shattered lives.
• Safe Haven is a place for healing from the trauma of abortion. Although the site says that they are not going to debate legality, morality or the religious ethics of abortion, please be aware that this site is definitely leaning to the pro-life side. However, having said that, it is an excellent site offering information on Post-Abortion Syndrome, provides crisis pregnancy information, offers a moderated bulletin board, and includes a section for men.
  
• Save Babies Through Screening Foundation is a national nonprofit public charity run by volunteers. Its mission is to improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening.
• Shattered Dreams. For mums and dads in the UK that have been affected by Pre-eclampsia/Eclampsia/HELLP Syndrome, what ever the outcome. Includes all the latest reasearch and also a link to the UK Support group that has chat rooms twice a week.
• Sidelines is a network of support groups around the US for women with complicated and "high-risk" pregnancies.
• Skyler's Site. A personal web page to remember Skyler, who was born with down syndrome and a heart defect and who died of pulmonary hypertension at 20 months.
• SOFT. S.O.F.T. (Support Organization for Trisomy 18, 13 and Related Disorders) is a nonprofit volunteer organization offering support for parents who have had a child with a chromesome disorder (such as Trisomy), and education to familes and professionals interested in the care of these children
• SPALS (Subsequent Pregnancy After Loss Support) is an email-based discussion group providing self-help support for subsequent pregnancy after a loss.
• Stepping Stones offers Christian based support, encouragement and information for couples facing infertility or pregnancy loss.
• Survivors of Abortion is a MSN community support group for those who have had an abortion. There are 12 different message boards to read as well as members story, a chat room (at specific times) and other sections including those for rape victims, for men. and grandparents. Email registration necessary to access some sections.
• Sympatico - This may take a little bit to follow because the site is so incredibly extensive. But it is well worth the effort as you can look through reviews of sites of hundreds of health topics, including premature delivery, miscarriage, stillbirth, SIDS, and probably most every other medical topic you may want. A hugely important site!
• Tapestry Books commercial site on adoption and infertility with hundreds of available titles and resources.
• TAR Syndrome, Alex`s website. A personal website help meant to help anyone confronted with TAR's Syndrome and at the same time find support for webowner's own son.
• Treacher Collins Syndrome. The wonderful personal reflections and yet highly informative web site on Treacher Collins Syndrome, a genetic craniofacial birth defect.
• Triplet Connection is a nonprofit network of caring and sharing for multiple-birth families. They provide information to families expecting triplets, quadruplets or more as well as encouragement, resources and networking opportunities for families who are parents of larger multiples. Includes a chat room, topics of interest, links, products, and information on their convention, among other things.
• Trisomy 18 Support Foundation, Families Caring for Families, is a support group for parents pregnant with, parenting, or grieving the loss of a child with trisomy 18.
• Turner's Syndrome. This extensive link provides exhaustive resources and information on Turner's Syndrome.
• Twinless Twins gives support to those who suffer from the loss of companionship of their twin through death, estrangement or in-utero loss.
• Ultrasound and other Prenatal Diagnostic Tests. Site of R. Harold Holbrook Jr. M.D, Division of Maternal-Fetal Medicine, Stanford U. School of Medicine. Includes info on Ultrasound, Genetic Amniocentesis, Percutaneous Umbilical Blood Sampling (PUBS), Chorionic Villus Sampling (CVS), Expanded - Alphafetoprotein Screening test (X-AFP), Link to Group B Strep Guidelines from CDC, Rh Disease in pregnancy , Choroid plexus cysts, Ashkenazi Jewish Genetic Diseases, and Cystic Fibrosis Screening Information.
• Uterine Fibroids. A single information page with a good overview of description and treatment of uterine fibroids.
• Warning Signs Of Possible Problems In Pregnancy. A short list of warning signs that signify you should contact your physcian immediately.
• Willowgreen.com. Especially check out their free e-cards for "grief" and for "transition"! They are absolutely wonderful.... Also includes readings on grief, illness, and transition.
• Women's Surgery Group. Providing extensive information on a host of women's issues, including endometriosis, infertility, extopic pregnancy, fibroids, adhesions, ovarian cysts and tumors, etc.
• Zellweger Baby Support Network. If your child has been diagnosed with Zellweger Syndrome, they want to help you. This disorder is rare, but you are not alone. Site includes information as well as message boards.